Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.

When the fun turns around, and bites you.

A major highlight of my year is National Train Day, which was yesterday, May, 10th. I spent four hours telling people about a vintage early era diesel locomotive that after a 26 yr restoration, was making her debut. I had a lot of fun, but was really exhausted. I woke up in the middle of the night, with my face attacking me, and today it is still at it. I have always known fatigue is a trigger, but heck it woke me up out of a sound sleep. I thought TN was not happening when you head is not moving. That is one big lie. It seems I have to take a week off, every time I do something fun, because it takes that long for my face to calm back down. Oh, well. I had fun, it was all about trains, telling myself it makes the face pain worth it.

Views: 57

Comment

You need to be a member of Trigeminal Neuralgia (TN) - Online Support Group to add comments!

Join Trigeminal Neuralgia (TN) - Online Support Group

Comment by saraiderin on May 14, 2014 at 9:21am

I am fine now. It is frustrating to have to go into things knowing there will be pain at the end, but I try not to let it stop me. One nice thing about train day this year is it did not happen during a heat wave this year. Heat really sets me TN off. Next year the beauty in my profile picture will be the steam locomotive featured, and I can not wait to help show her off! :o) She is the last of her kind left in the world. Can you tell I love trains?  ;o)

Comment by Jamie on May 13, 2014 at 7:11pm

I was the same way as a Volunteer at my daughter's Field Day activities at school last Thursday. The pain was moderate but I promised her I would go. I went, had fun, tried to ignore the pain as much as possible. By that night I was exhausted and the weekend was horrible. One day, one little activity can cause days of worse pain.

Hope you are better now!

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingwithTN.org, Click an Ad. Or Two.

Gift Store

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service