Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.

I’m the co-founder of this site and help run a group called Ben’s Friends (www.BensFriends.org) that builds patient support networks for people with rare conditions. I do this cause I love it. I’ve met so many wonderful friends on this journey.


It all started when my buddy, Ben Munoz, had a stroke caused by a rare condition called AVM. Ben survived but during recovery he couldn’t find a support group…so he started one called AVMSurvivors.org. We realized we were helping a lot of people so we started many more. Today we run 30 online support groups and are growing rapidly, thanks to the wonderful volunteer moderators that help manage the communities.


Find out more about Ben’s Friends at www.BensFriends.org and watch our 60 second YouTube Video at http://youtu.be/YBeRFnJkleU


I’m also at these sites and love new friends!
Twitter: https://twitter.com/scottorn & Facebook: http://www.facebook.com/scottgableorn

 

If you would like to help us spread the word about patient support, please post about us on Facebook, Twitter and Blogs. Pasting in the URL, or Internet Address, of this community will make it easier for others to find us and get the support they need!

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Comment by Seow W on February 25, 2012 at 7:19pm
It is so nice and thoughtful of you to start this site. We did get support here and hope that with so many interactions , we will inspire someone to find a cure eventually . ( I may be very naive and too optimistic ) :-).
Comment by crystalv on February 10, 2012 at 8:35pm

You and Ben are an inspiration!

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