Planning a vacation

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Comment by Marcy on February 10, 2012 at 6:37pm

and you too!

Comment by elstep on February 9, 2012 at 11:55pm

Yes i will declare it on my insurance i know it will send the rate higher,but for piece of mind,just in case i needed medial attention for it.         Especially in the US where it is soooo expensive!    Which takes us back to your original question - the fear of it happening on holiday.      Hope you have a lovely pain free time and can enjoy some time with your husband  

Comment by Marcy on February 9, 2012 at 6:39pm

I live outside NYC and my husband is structural/mechanical engineer and insists on doing everything himself so I can sympathize with you - we are in a constant state of renovation.  When I had my big attack in October we were renovating the bathroom - what a job!.  Anyway, it was not good timing to be distracted with a major pain attack.

I work for a government science lab and I had a visiting postdoc from Spain go to the hospital for an emergency and the 1/2 hour visit was $1800.  So if you ever come to the U.S. make sure you have health care insurance!

Comment by elstep on February 9, 2012 at 1:06am

Your in NY wow!!   If you would like to house swap across the pond in a few years, I would be up for it!   were renovating so once its finished!  my husband is doing it himself as well as working so it taking forever!

Comment by Marcy on February 8, 2012 at 6:35pm

My GP gave me a one time prescription for Tramadol when I first went to him with a terrible attack in October 2011.  I don't know if my neurologist would give me a prescription for Tramadol as there have been several holdups at pharmacys around here in New York and there is a big public outcry about pain prescriptions.  Obviously most of the public has no experience w/TN!!

I read the same thing about flying w/TN so that added to my nervousness.

Thanks for responding - it was helpful just to hear your thoughts.  I will ask my neurologist for a letter at my next appointment on Feb. 20.

thanks again for responding.

Comment by elstep on February 8, 2012 at 1:26pm

i have the same thoughts.     I am planning to carry my meds on board, in case i need them, with a letter from my doctor.         take plenty of meds with you for breakthrough pain.    I wonder if others have declared this condition with their insurance?    I guess we should ask that as  separate question.    I dont think it would cost much to have it put on to the insurance to cover you if you had to attend hospital.         I have read reports here saying flying has effected their TN but many others saying they were fine.   Earlier this year we had a holiday but did not leave the country because of my fear but maybe later on in the year i will attempt it.         Best wishes