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Comment by Anna Roth on March 20, 2011 at 6:33am

I´m in the worst of pain.....TN, discherniation, 1 surgery at my neck herniation 2007, now it´s a permanent nerve injury. Last year a new discherniation. 3 surgeries for TN, 1 MVD and two nervblokades. Endometrios, probebly Anasthesia Dolorosa and probebly Cluster Headache , 1 operatde knee, the minisk, arthros in my knee......surgery for a ( bråck ) in my stomich.....all in all 9 surgeries. I probebly haven´t spell this words right but i just needed to share this. Write it down......because i´m so tired of all this pain......pain inthe morning, pain in the day, pain in the evening and pain all night long......I have tried all the medicines.......Tegretol, Gabapantin, Fenantoin, Iktoviril.....jet nothing seemes to help me but the nervblokades i have every second month. But they are just awful to have.....i juse to say that i die a little everytime i get them.....I´m 41 and i walk with a rolator .....have a wheelchair when i´m going to town......i have felt a couple of time and that have made me so afraid. I have a home alarm if i fell so somone from the "homecaring" can come and help me.....I´m just old in a pretty young body.....i´m just pain broken......all the pain is about to takr my soul aswell and i just had to write it all down.....I know that i have so many things to be grateful for......ut when i can´t walk, i can´t talk, i can´t smile, i can´t move it´s so very difficult to think about this.......i am so thankfull to Pat, to all my friends here, but i had to write this down........i had to share it before i go apart in tousends of pieces.....How shall i move forward, how shall i be able to get the strenght to deal with all this pain.....my whole body is in pain......i have all the homethings that i need. I sits on the toilet that made it easier for me to sit down.....i have a tool that makes it easier to pick up things a drop on the floor but i´m about to give up......I try so hard everyday to fight to keep on but it always hurt, always hurt......I sufffer so much all the time.....

Comment by Leanne Ferguson on February 17, 2011 at 4:20am

This is the worst pain i have ever felt, i had to force  myself to eat as i have diabetes otherwise i would have just stopped eating and drinking altogether... i dont know if previous sinus surgeries have caused this? its been years since i needed any dental work so i doubt thats a cause? but the Neurologist suggest not having any dental work as it can trigger it off, i dont know if any of this has to do with my PID - primary immune deficiency in which i have a transfusion of Intragam every 4 weeks but i doubt it as i am into my 9th year of doing that... there is no one else in my family who has TN so i dont know if its genetic? but i shall battle on as i do,  its a cruel pain and i wish there was a miracle cure for all... and i hope   to make some new friends here too!

Comment by Brogan Woll on February 14, 2011 at 2:30am

I am up past midnight not because Iam not tired but because the pain is keeping me up.  If I take any more than 2 percocet I get hives and it all over.  I don't know what to do. I thought I had it under control then it knocks me on me ass.  I am sick of this.  I was just getting back in a normal routine. This pain is unbearable.  I am trying to rally and be a fighter but how many times can I get back up?

Comment by Glynis Anderson on November 28, 2010 at 5:14am

Hi I've been to chat room but I don't know how to use it can anybody tell me what to do ?? x

Comment by Ben Munoz on November 11, 2010 at 9:14am

Sally, we're here for you. Lean on us.

Comment by sally choate on November 10, 2010 at 2:22am

I FEEL SO SORRY TO ALL I NEVER WISH THIS ON NOONE
IS SO SAD WE HAVE TO STUFFER , I THINK ABOUT BYE BYE WORLD
BUT I LOVE MY GOD GOD BLESS YA I FEEL SO SORRY FOR YA!!

Comment by uwfotogal on September 15, 2010 at 12:20pm

I just found out a product a kind of head/neck/facial warmers in various styles and color available on this site. Mention that you saw it here on lwtn and we might just be able to get a discount. I just made her aware of how it is going to help me in the winter. She's very excited about being able to actually help people that need it more than want it. http://www.etsy.com/shop/ozetta?section_id=6567668

Please visit her site and have a look at all the different types of scarves, head covers, cowl necks that she makes herself and you can order anyone of them in about 50 colors.

I hope this helps someone else.

Comment by Ben Munoz on June 16, 2010 at 12:30pm

Jackie, hi, you are approved already.