Deep Dark Place

Comment

Comment by Liz K. on February 5, 2010 at 10:53pm

Lena,
I'm sorry. You could seek another opinion. I've read that some do have success with MVD even if they have atpical. It is just a thought.
Are any days better than others?
Thinking and praying for you.
Liz K.

Comment by Lena on February 5, 2010 at 10:04am

Liz they decided I was not a candidate for surgery because I have atypical tn. I am on carbatrol, topamax, and I also take percocet.

Comment by Liz K. on February 4, 2010 at 8:05pm

Lena,
When do you go to the neurosurgeon? I really feel for you and everyone who suffers with pain. Don't give up even though I know how you feel. I am praying the surgeon will be able to help you. What medicines do you take?
Liz K.

Comment by Lena on February 4, 2010 at 3:47pm

Ro At my job I believe we are able to apply for either long term or short term disablitiy depending on your situation.
Thank you all for your support. Liz I just take it day by day some days I barely make it through. But I know I have to because I need my job for the money. I it really hard.

Comment by Debbie Twis on February 3, 2010 at 11:10pm

Lena,
I am so sorry for all that you are dealing with. Please know that we are here for you. I don't know if you have the book "Striking Back", if not you should get it. I don't know anything about Meniere's Disease. Don't give up. Keep looking for a Neurolist that will help you. I will keep you in my prayers.

Comment by Liz K. on February 3, 2010 at 10:04pm

Lena,
I'm sorry you are going through terrible pain. I don't know how you manage to teach with TN pain. I could barely sit at a desk at work. And I did as little talking as possible. I hope the neurosurgeon will be able to help you. I can't imagine what my life would have been the past 9 months without the MVD surgery. I still have pain but it is very manageable.
Liz K.

Comment by Kristi Boyer on February 3, 2010 at 11:40am

Lena,
I don't want to be discouraging, but a month ago I was exactly where you are. I was so over this. I fought with my doctors to try new meds and doses and combinations. I finally got a neuro who listened and helped (yesterday) and I am feeling so much better. It didn't happen over night. I just woke up on Monday and didn't feel horrible. Yesterday driving to the dr, I told my husband I didn't want to jinx myself but that I had been feeling a little better. Slowly it happened. Just keep trying. You can get there...you have us to support you...
Much love,
Kristi

Comment by Melodye Olsavsky on February 3, 2010 at 7:14am

Lena, I'm so sorry. I wish I had answers for you, but I don't. Try to take it a day at a time, or even an hour at a time if you must. I use a heated rice bag. It sometimes helps. I don't have answers, but I understand. May you be blessed today.
Melodye