CPP and ODSP

Comment

Comment by Janet Elg on January 27, 2011 at 6:12pm

@Lily I have my fingers crossed for you.  Is TN the only disability your claiming? I can see why they'd really make you work for it.  Considering how often I have trouble with doctors and that I ussually just give up.  I probably have more health problems.  All of my joints crack and hurt everyday so I know I should get that checked out I just don't have the energy for something like that.  lol Good luck Lily!!!

@Charna I've been told my TN is atypical because I have fluctuating dull pain almost 24/7 and the attacks other ppl normally have.  I don't think i've had a pain free day in well. . .along time.   Also, I've had CT scans and MRI's and there apparently is nothing compressing my trigeminal nerve because the pain is on both sides!!! anyways, Thanks again for reading my blog.  It feels good to know i'm not alone

Comment by charna goldin on January 27, 2011 at 5:14pm

I wish you luck. I know how hard it is to work during attacks. When I get them they never let up and it is continuous pain. I've had to leave work in tears a few times because of it. Best wishes. My heart is with you

Comment by Lily on January 27, 2011 at 2:34pm

Oh, I forgot to add - my trial for Disability will be next week, and I am so scared to hear the outcome - I have been denied twice, and the trial is the final chance to win it. So please, root for me next week, and you know I am rooting for you.

Lily

Comment by Lily on January 27, 2011 at 2:31pm

Janet,

I agree - it is hard to find a good medical professional, and an ally - I had to go through a few before I found the good ones, and I had to learn how to speak my truth - it was very hard at first - I felt like a complainer and I really hate to complain. I come from stoic backgrounds, English and Dutch, so it really does not come easily. Please keep practicing and trying to find your voice. You will, it just takes time and practice.

Take care, honey, you are not alone.

Lily

Comment by Janet Elg on January 24, 2011 at 2:20pm

Thanks Lily, 

It gets to a point that you don't know where to start trying to mend those relationships.   I've tried, with no success, so I try to take their comments and oppinions at face value.  But its hard, when you let someone walk all over you, your entire life how do you change that.  But your right, i do keep going and stay true to myself.  I, like anyone, get a little down and its nice having an outlet.  I don't have many close friends in the city i live in.  But its comforting to know that I can let it all out on here and that people read it.  I've always felt invisible, to a certain extent, especailly in the eyes of "medical professionals".  I get sidetracked, opps, thanks Lily for reading and thanks for the hugs

Comment by Lily on January 24, 2011 at 2:09pm

Hi Janet,

(((((((((((((((((((((((HUGS))))))))))))))))))))))), I don't know what to say to all of this, except that you should make them come in with you and talk to your doctor - but my heart just aches for you, and I so wish that it wasn't this way for you. You deserve to be treated every bit as well as you treat others - they have no right to make you feel any less as a person. So please stay strong, and try not to worry about what other people say about youand to you - you know your truth, so honor yourself and stick with it, and please tell them that they are wrong, so that they can begin to learn what hell it is that you are living.

Lily