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MUSICAL DEDICATIONS

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Weather Pressure and Sto…

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ELECTROMAGNETIC HYPERSEN…

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Type II Trigeminal Neura…

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jamie leigh's Discussions

Afraid to have wisdom teeth pulled
9 Replies

Started this discussion. Last reply by jamie leigh Oct 16, 2011.

So Many Problems
5 Replies

Hi Everyone,I haven't posted in awhile. Had MVD (unsuccessful) about 1 1/2 years ago. The ATN pain has never healed completely but I haven't had to take meds like tegretol, thank God. I still have…Continue

Started this discussion. Last reply by Donna Mills Aug 29, 2011.

My face doesn't even look like it used to!
5 Replies

Since ATN hit a few years ago it seems my jaw/smile is completely deformed. I used to be pretty - now I feel like I can't even smile without my teeth hitting and my jaw feeling out of whack. I feel…Continue

Started this discussion. Last reply by Richard A. "Red" Lawhern Jul 1, 2011.

Tegretol may cause low folic acid and vitamin D
16 Replies

I was on tegretol for nine months last year. I've been completely exhausted since then. I recently had blood work done that showed I have chronic or recurrent mono. The blood work also showed my…Continue

Started this discussion. Last reply by Cathy Collum Jul 12, 2011.

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Latest Activity

elaine48 replied to jamie leigh's discussion 'Afraid to Fly!!' in the group Weather Pressure and Storm Front Sufferers

I feel all weather changes. Cold is the worst. Then high humidity. Anything that increases pressure on the nerves. I dont think everyone is affected like this.

Dec 4, 2011

La La replied to jamie leigh's discussion 'Afraid to Fly!!' in the group Weather Pressure and Storm Front Sufferers

I am terrified to fly because I have the same problems with the severe ear pain. Just driving through the mountains with minor altitude changes I suffer severe pain and attacks. I drove from Pittsburgh to Boston with friends and I was so miserable…

Dec 3, 2011

jamie leigh replied to Rockhopper's discussion 'Anyone else develop TN after Shingles or PHN?'

I was first diagnosed with TN, had the MVD in summer 2009. Then in winter 2010 developed shingles - opposite side of TN. This was followed by recurrent mono which zapped my energy completely for several months. Still have flares with itchy, sore…

Nov 9, 2011

jamie leigh commented on Kerry's group 'MVD's'

Melodye, I'm so sorry to hear your pain is back. I had my MVD shortly after you did. Jamie

Nov 2, 2011

jamie leigh replied to jamie leigh's discussion 'Afraid to have wisdom teeth pulled'

This may be true Red, although I do believe in order to get the tube inserted the jaw may have been opened more widely than accustomed to, and for how long or intense that was, we do not know.

Oct 16, 2011

Richard A. "Red" Lawhern replied to jamie leigh's discussion 'Afraid to have wisdom teeth pulled'

I hate to rain on anybody's parade, but any tube placed in your mouth during MVD surgery would probably have required that your mouth be CLOSED, to operate properly as either a ventilator or saliva pump. The mouth is not deliberately held open…

Oct 15, 2011

jamie leigh replied to jamie leigh's discussion 'Afraid to have wisdom teeth pulled'

Hi Vicki! It's good to hear from you. How have you been feeling? I will have to bring that up to my doctor about the plastic pieces. That sounds a lot easier than what my doctor is recommending. It made sense to me also that the surgery…

Oct 13, 2011

vickie d replied to jamie leigh's discussion 'Afraid to have wisdom teeth pulled'

hey jamie. sorry to see that you are still having problems with yours. Following my MVD surgery my jaw was messed up too. I went to a prosthodontic before my MVD to make absolutely sure it wasn't a nerve in my mouth or…

Oct 13, 2011

lynda brown replied to jamie leigh's discussion 'Afraid to have wisdom teeth pulled'

My dentist only does the work needed to keep my teeth healthy ,I would consider changing your dentist ,the thought of having healthy teeth extracted is a bit freaky to TN people .and as for blaming the MVD ??

Oct 3, 2011

jamie leigh replied to jamie leigh's discussion 'Afraid to have wisdom teeth pulled'

Thank you Jennifer for your message. You encourage me to not give up hope on finding a good, caring doctor/dentist.

Oct 1, 2011

jennifer321 replied to jamie leigh's discussion 'Afraid to have wisdom teeth pulled'

I haven't had my wisdom teeth out but my dentist tells me I need to have oral surgery to have extractions of my back teeth. I haven't done it because of being scared it will trigger an attack and I was actually nervous about getting any…

Sep 30, 2011

Richard A. "Red" Lawhern replied to jamie leigh's discussion 'Afraid to have wisdom teeth pulled'

Your instincts are spot-on, Jamie. Dental work is often associated with flareups of either or both types of TN pain. Likewise, removal of your wisdom teeth might help realign your bite, but the greater issue is whether your bite even NEEDS…

Sep 22, 2011

Afraid to have wisdom teeth pulled

My TMJ doctor wants me to have my wisdom teeth pulled in order to help realign my bite (which seems to have been caused by my MVD surgery). I'm very afraid this will bring on major ATN symptoms again. When I shared this with him he said this wasn't true and seemed frustrated with me that I didn't simply agree to what he advised. I did what my neurologist and brain surgeon advised and am not happy that I did. I'm not going to rush into something again that I'm not comfortable with. I've read so…See More

A discussion started by jamie leigh was featured Sep 21, 2011

8 Comments

Jackie replied to jamie leigh's discussion 'Afraid to have wisdom teeth pulled'

I feel for you on this Jamie. I have a dental procedure next week and had a look at the info on the Face Pain Info tab and on the Facial Pain Association site for more as advised. I am going to follow all the advice I have seen and crossly fingers.…

Sep 21, 2011

Afraid to have wisdom teeth pulled

Discussion posted by jamie leigh Sep 21, 2011

8 Comments

Richard A. "Red" Lawhern replied to jamie leigh's discussion 'TN/ATN...Viral Infection?' in the group Atypical Trigeminal Neuralgia

Of the drugs you identify, Neurontin and Famvir may have the best likelihood of helping in Post Herpetic Neuralgia. Zoloft and Cymbalta can help calm you down and disconnect the depressive elements in your pain that contribut to more pain through…

Sep 21, 2011

Profile Information

What treatments have you undergone (or will undergo)? With what success?: tegretol

Please share your TN story with us...(How did your pain first emerge and then change over time? Were you ever misdiagnosed? Do you believe your pain was caused by dental work? Have you had unsuccessful surgeries or medications?): Had extreme, constant pain. Stabbing pain in my ear. Severe sensitivity in my teeth. On tegretol now and feel really bad - dizzy, tired - had to take a leave from my teaching job. Going to brain surgeon in two weeks for options.

Jamie leigh's Blog

TN, MVD w/ no success, TMJ, shingles and Epstein Bar Virus! HELP!

I have a feeling these are all connected. I've been so healthy my whole life until 1 1/2 yrs. ago. Shingles is a virus, my blood work showed that I have chronic or recurrent eptstein bar virus...shingles can lead to neuralgia but I had the neuralgia first. I really think it's all connected but nobody seems to know or they say it's not connected. Any ideas please????????? I'm so tired, in pain and depressed!

Blessings to all of you.

Posted on May 21, 2011 at 4:53pm

I had MVD almost two weeks ago. I have been regaining my strength the past few days. Tonight my husband and I were watching a comedian on TV. He was hilarious and we were both laughing so hard...then…

I had MVD almost two weeks ago. I have been regaining my strength the past few days. Tonight my husband and I were watching a comedian on TV. He was hilarious and we were both laughing so hard...then the side of my face started aching so badly and the pain/stab in my ear. Did this surgery not work? I haven't had to take the tegretol but I started crying because I'm afraid this hasn't been fixed. My laughter and smile is ME. That is such a big part of who I am (was) before this awful condition… Continue

Posted on May 19, 2010 at 10:23pm — 8 Comments

Patience

Hi Everyone,

It's been a week and a half since my surgery. Yesterday my sister was with me all day. Even though I took it easy, I talked more than I have since I've been home and I ended up feeling pain on my right side (MVD side). It's numb because the dr. pinched the nerve but it scares me because it makes me wonder if it will all heal and be over with or not. I usually only need tylenol but I still wake up in the early morning with a terrible headache. I have to get up or it will… Continue

Posted on May 18, 2010 at 7:59am — 1 Comment

Surgery over

Hi everyone,

This is the first day I've felt well enough to write. Have had nausea and a pretty bad headache but seem to be improving a little each day. I haven't had any shooting pain but to be honest i'm not sure what pain is healing pain right now and what isn't. That side of my face is numb and it feels like i am wearing an ear plug. My MRI had shown a compression but when he went in he didn't see a compression. he ended up moving some nerves and pinching one. It doesn't sound good and… Continue

Posted on May 10, 2010 at 7:51am — 11 Comments

Comment Wall (38 comments)

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At 9:43pm on April 25, 2011, Sheila said…: Jamie, if you go to the far right upper corner, you will see a box that says "Jamie Leigh" then "inbox, alerts,friends, settings." inbox shows all the private messages you have received but might have missed. Friends shows how many people have requested to be your friend. You may want to go there and accept or deny whoever you would like to. I'm one of them :D.

Blessings, Sheila

At 9:36pm on April 25, 2011, Sheila said…: Hi Jamie, If anything I have said to you has comforted you, I'm grateful. No man/woman is an island, especially with this devastating pain. We need each other.

Blessings, Sheila

At 11:36pm on February 23, 2011, Sheila said…: Oh man Jamie...I am SO sorry it didn't work. I guess that's why my province's health care system won't pay for it. Too much of a failure rate. There are 2 types of TN. I wonder if yours was not a compressed nerve, but the other kind where the artery enlarges and pounds against the nerve whenever it pulses. For those, a little silicone coin type thing is put between the nerve and artery to protect them from each other. TMJ and shingles too...gosh, sometimes I do just wonder how much pain these bodies can bear. Mine can't bear much cuz my heart has stopped from my pain, a few times...but I'm still here.

That cream might help all 3 problems...I hope I hope I hope.

Hugs, Sheila

At 10:09pm on February 23, 2011, Sheila said…: Ohh...I just saw your comment to me about asking for the cream. That means your MVD did not work. Wow I am so sorry. So you didn't get ANY time pain free?

At 10:04pm on February 23, 2011, Sheila said…: Hey Jamie, thinking of you. I posted more stuff in "discussions" on the electromagnetic sensitivity group. I read above about your pain 2 weeks after MVD surgery in May. How are you doing now? Did it work for you? So many say it works for a while, some say it worked for them pernamently. Each person is different.

Hang in there,

At 9:50pm on February 21, 2011, Amanda Micaela Cook said…: thank you and yes it is. im going to take a sleeping pill so hopefully i can sleep. hope you are doing well i accepted your request

At 2:33am on February 12, 2011, Stef said…: Hello, Jamie! I just wanted to drop by and welcome you to our ATN group! I hope now that you feel as if you are no longer "alone".

At 1:35pm on November 7, 2010, Bob Snodgrass said…: Very well, Jamie, thank you - especially when responding to my friends here!
How are you? bob

At 2:12pm on November 6, 2010, uwfotogal said…: Hey Jamie, I just read Liz K's message where her dr. put her on Klonopin. It's like a big valium. And she said it is really helping. She's also taking a larger dose of Neurontin and that seems to be helping. I still take xanax tho since I've been taking it for so long, it has become somewhat ineffective. I'd rather switch to Klonopin and when I see my doctor next I'm going to ask him. I also wore a night guard, but it made me in so much pain, when I went to my therapist he told me to return it or ask for an adjustment. When I went back to this "christian" dr. he had his wife, take it away from me and they gave me a "partial" refund. I thought this was not what a man of God woluld do. He had Bibles in his office and lots of Christian literature, but it became obvious that he was pretending. Under the guise of Christianity he was getting patients. OOOOOOOOOOOOOO, it made me angry that was some 10 years ago and I've forgiven that poor man. Still trying to be the best I can be. No more opiates. Julz

At 1:52pm on August 3, 2010, Pat Gascoigne said…: Hi Jamie Leigh,
My chiropracter said my jaw was mis-aligned; she stroked the muscles to relax them but said that they were so powerful they would seize again. When I went to my [ordinary ]dentist he said the jaw was fine I was just grinding my teeth. A mouth guard aggravates my TN. When I googled Bruxism I came across something about sleeping on your face which cause compression and ligament damage and that the teeth grinding is an attempt to re-align the jaw when you swallow. Don't know if any of this is relevant to you but good luck, it sounds as if you've had an awful time. x PS I also get neck & shoulder pain.