Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.

Loretta Durbin
Loretta Durbin
  • Female
  • United States
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Loretta Durbin and Kristi Boyer are now friends Dec 12, 2009
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Loretta Durbin and Tami McGough are now friends Oct 10, 2009
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Diana Parker left a comment for Loretta Durbin Oct 5, 2009
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liz left a comment for Loretta Durbin
hiya,i dont think they prescribe savella over here,i no its used a lot for fibromyalgia sufferes,i too have tried many meds and nothing works,have been suicdal many times ,please let me no how the nerve block went for u ,take care xxx
Oct 3, 2009
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Loretta Durbin left a comment for liz
Hey Liz. I too suffer from this ear pain that is so excrucitating I am at the verge of screaming all the time. No medicines seem to work for me. My doctor just put me on a new med for chronic pain and Chronic Fatigue called Savella. I hope that it…
Oct 2, 2009
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Had another nerve block today. Hope it works
Status posted by Loretta Durbin Oct 2, 2009
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Loretta Durbin and Diana Parker are now friends Oct 2, 2009
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Kerry left a comment for Loretta Durbin
Dear Loretta, I want to firstly add my Welcome to our site - you've come to a great place with many helpful, supportive people - and a good deal of understanding. I too, like Ro - wish things to get better for you as soon as possible, it is…
Oct 1, 2009
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Loretta Durbin commented on Diana Parker's group 'GLOSSOPHARYNGEAL NEURALGIA'
Couldn't hurt. I usually do get a copy of any tests so that I can have them for the other md's. They all want to repeat tests or think that their scans will be better.
Sep 30, 2009
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Loretta Durbin commented on Diana Parker's group 'GLOSSOPHARYNGEAL NEURALGIA'
Hello to all. I have been suffering with GN and ON for over 3 years and need to know if there are others out there that are living with this type of pain. I have constant pain in the tonsil area, back of the tounge, into the ear and to the back of…
Sep 30, 2009
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GLOSSOPHARYNGEAL NEURALGIA

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Other facial neuralgia
Loretta Durbin joined Diana Parker's group Sep 30, 2009
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Loretta Durbin is now a member of Trigeminal Neuralgia (TN) - Online Support Group Sep 30, 2009

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What treatments have you undergone (or will undergo)? With what success?
multiple MRI's, CT scans, botox, pain management injections, tonsillectomy
Please share your TN story with us...(How did your pain first emerge and then change over time? Were you ever misdiagnosed? Do you believe your pain was caused by dental work? Have you had unsuccessful surgeries or medications?)
I had just returned to work after having my third baby. She was 3 months old and had RSV pneumonia. I was up night and day taking care of her and I had some sort of nasty foul smelling YUCK come out of the throat. I gargled and brushed my teeth and kept taking care of my baby. Later that day, I became extremely dizzy and had shooting, stabbing pain in my face. I went to the ER. Treated with antibx etc. and never got any better. Pain continued to worsen. Traveled to the back of my throat, into my ear and out the back side of my head.
I have seen multiple doctors and have tried so many medicines and nothing seems to work for me.
My pain is constant, unrelenting and I have trouble doing just about anything. The pain is so intense and sometimes travels down my neck and into my chest. I have passed out from the pain.
Would you like to recommend a doctor, therapist or a hospital?
NO, would like to know where to go for treatment

Comment Wall (3 comments)

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At 8:13pm on October 4, 2009, Diana ParkerDiana Parker said…
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At 7:32am on October 3, 2009, lizliz said…
hiya,i dont think they prescribe savella over here,i no its used a lot for fibromyalgia sufferes,i too have tried many meds and nothing works,have been suicdal many times ,please let me no how the nerve block went for u ,take care xxx
At 7:10pm on September 30, 2009, KerryKerry said…
Dear Loretta,

I want to firstly add my Welcome to our site - you've come to a great place with many helpful, supportive people - and a good deal of understanding. I too, like Ro - wish things to get better for you as soon as possible, it is hard especially sometimes just finding the right doctors who understand our illnesses such as these.

You mentioned you've seen multiple doctors - were any of these Neurologists? I imagine they must have seeing how you've had the MRI's done too. Did anything show up on the test results? Nerve compression or anything like that - it rarely does show on these MRI's but is known to show on occasion.

I must go now, I have a doctors appointment (I'm in Australia - so it's morning here) but wishing you well and look forward to chatting with you soon.

Cheers ~ Kerry.
 
 
 

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