"Hey hey,
I just typed you out a full response and my damned laptop crashed! I'm so sorry to you've had a bad run and I can certainly sympathise, the gaba destroyed my mood too, what I will say is PLEASE PLEASE PLEASE PLEASE…"
We are patients living with Trigeminal Neuralgia, here for your support.
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Grace Mackay
- Female
- Livingston, Scotland
- United Kingdom
- Blog Posts (14)
- Discussions (41)
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Grace Mackay's Groups
Grace Mackay's Discussions
New Livingwith......... Glosso site up
Started this discussion. Last reply by Bob Snodgrass Oct 8, 2010. 1 Reply 0 Likes
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The fall of Grace...............
Latest Activity
Grace Mackay commented on Angela Filewood's blog post TN + Tegretol + Hormonal Birth Control =Just the tip of the iceberg in a MAJOR re-evaluation of my life"Well back again, following the joyous trip to asda, and unfortunatley I have no idea as to what point(s) I was going to make as is all too often the way, no doubt they will come back to me eventually but probably in the middle of the night, damn…"
Grace Mackay commented on Angela Filewood's blog post TN + Tegretol + Hormonal Birth Control =Just the tip of the iceberg in a MAJOR re-evaluation of my life"Angela,
H£ll yeah I relate!!! I'm 4 years into this and I know just what you're going through , my diagnos is was initially TN, but has turned out to be GPN, but bye's the bye, I know the drill.
NO, no one tells us…"
Grace Mackay posted a discussion"Alternative" Treatments..........
Now the wonderful Bobs post gave me pause to think a little about all of the treatments I've heard being used over the years and not wanting to hijack his thread I thought I would add another one, cause some of these are just hillarious. Now Before I start, I'm not going to write all of these off as hocus pocus, because some of them do have legitimate reasoning/logic behind them, but you can choose what and which you want to take stock in, all I can say is that I've not whole help for anything…See More
Richard A. "Red" Lawhern commented on Grace Mackay's blog post The Guilt of Neuralgia........"When you see the Obstetrician, I'd remind you and encourage you to ask about a referral to another professional who provides rational cognitive therapy and/or supportive counseling for issues of depression. Both post-partum and other…"
Grace Mackay replied to SF Bill's discussion Transgeminal Neuralgia and Ageing"I don't know in general terms but I certainly have a maternal aunt who is in her late 80's and unfortunatley still suffers terribly from her TN.
It will be interesting to hear what others have to say on it. Hopefully there will be…"
Profile Information
- What treatments have you undergone (or will undergo)? With what success?
- Tegretol, tegretol retard, gabapentin, lamotragine, lyrica,endomethacin, venlafaxine, ametryptaline, dulexatine vit B, acupuncture, chiropractiv, removal of piercings, rubs, lotions, compresses, pain killers, ect etc, 2 MRI's EEG video tel, CT
- Please share your TN story with us...(How did your pain first emerge and then change over time? Were you ever misdiagnosed? Do you believe your pain was caused by dental work? Have you had unsuccessful surgeries or medications?)
- After various diagnosis and theories, I have secondary GN caused by Eagle's syndrome, currently awaiting confirmation to have billateral styloidectomy
Grace Mackay's Photos
Grace Mackay's Blog
The Guilt of Neuralgia........
Posted on June 19, 2011 at 10:22am 8 Comments 0 Likes
Hi guys,
I'm not on this board too much now, as I spend most of my time on the LWGPN board now, but I check in occasionally and couldn't not post today.
But for me the psychological toll of the neuralgia is taking a heavy price, I hope you don't mind if I share my feelings on this.
I'm 29, been with my man 12 years, married 5, and believe me our relationship is far from perfect, in many many ways, but yet we continue to muddle on and I…
Continue Anticonvulsants actually causing pain?
Posted on September 29, 2010 at 9:52am 13 Comments 0 Likes
Hello hello my lovely lot.
I've come on to muse and mumble again, I'm not sure if I've blogged about this on here or gone into it in much depth other than in individual conversations, but I saw someone posting about this and I lost the post ( the joys of not having to have a chance to reply at work!) And funnily enough the subject came up again on another board that I use this week too, so I thought I would come on and share my experience of it.
Now this is very much a… Continue
I've come on to muse and mumble again, I'm not sure if I've blogged about this on here or gone into it in much depth other than in individual conversations, but I saw someone posting about this and I lost the post ( the joys of not having to have a chance to reply at work!) And funnily enough the subject came up again on another board that I use this week too, so I thought I would come on and share my experience of it.
Now this is very much a… Continue
Suck it up................?!?! Erm, I don't think so!!!
Posted on September 25, 2010 at 7:55am 3 Comments 0 Likes
Hello hello my lovely lot,
I was just reading a post that Nancy left in my last blog and it reminded me of a conversation I've had with a friend of mine.
Now my friends mother has neuralgia, or so she calls it, from what I've heard though I think it's far more likely to be AFP, or ATN, anyway my pop-armchair- non medical diagnosis of a woman I've never so much as spoken to aside, there is a point that I will come to.
Now my friend has serious medical issues herself,… Continue
I was just reading a post that Nancy left in my last blog and it reminded me of a conversation I've had with a friend of mine.
Now my friends mother has neuralgia, or so she calls it, from what I've heard though I think it's far more likely to be AFP, or ATN, anyway my pop-armchair- non medical diagnosis of a woman I've never so much as spoken to aside, there is a point that I will come to.
Now my friend has serious medical issues herself,… Continue
3 Years Today..........
Posted on September 23, 2010 at 2:29pm 5 Comments 0 Likes
So, today that today is my spaztastic anniversary, me and my she-b!tch tazer wielding, stilleto wearing, bread knife wielding she-bitch in my skull have been riding
together for 3 years as of today.
It's not a happy anniversary or birthday, but it's certainly one that's
given me pause to think, after laughing at a sarcastic,
congratulatory PS message, I thought I would maybe share some mumblings or
musings or just come on and waffle for a while,…
Eagle syndrome???
Posted on October 29, 2009 at 8:54am 4 Comments 0 Likes
Hi guys have any of you looked at eagle syndrome as a cause of pain? it was something that I had always discounted,because of belief of true neuralgia, but something encouraged me to look at it in a bit more depth last night and I found it really interesting. SOme of this is fitting quite well, I have throat clicks, difficulty when dry swallowing, I have had my tonsils out, which I mentioned somewhere before, albeit more than 20 years ago, anyway I found this here…
Continue
Continue
Comment Wall (21 comments)
- At 7:55pm on November 2, 2010,
Bob Snodgrass said… - You she-person, you!
On FB, Gracie told Yvonne that it was my "tone" not my "certain way with words". LOL! That statement makes me feel as if I were in elementary school...that's a good thing!
I got tasered 01/07, joined BT 03/07 and found 'us' 11/08. Expanded, you bet! I am still finding my way around...I think out of 2 years on here, I medicated-out for 3. ; )
Your friend, Yvonne, is very caring. If I don't get to, please tell her so. You are wealthy in having friends as she.
I see Twitter isn't your thing...I'll have to check you out at http://www.bensfriends.org
"All I want for Christmas is my two front tusks". Take care, bob
- At 7:23pm on November 1, 2010, Bob Snodgrass said…
- Hi ya Gracie!
I be good and you?
00:00 GMT (I don't use UTC or whatever else) I trust you are ZZZing with pleasant dreams.
This 'Comment Thread' goes back to December 22, 2008 : ) Wow!! You are old!!!!!
Thanks for the shout-out...We'll linkup, FB, BT, Twitter or here : ) xx and x, bob
- At 8:03am on October 2, 2010, Bob Snodgrass said…
- Gracie, I am still on a learning curve. Start on any search engine - HOW TO TWITTER - WSJ.COM
I started there, then went to you-tube videos.
You'll get tired of seeing this comment on some of your other 'sites'.LOL
Take good care, bob
- At 5:52am on September 30, 2010, Bob Snodgrass said…
- nice picture...bob
- At 7:00pm on September 29, 2010,
Lisa W. said… - I'm glad I found you guys too. It sucks having TN and knowing no one else whose even heard of this.
- At 4:29pm on September 27, 2010,
Sarah Hobbs said… - up to a chat???/
- At 4:36pm on September 24, 2010, Sarah Hobbs said…
- sorry I missed you! :(
- At 2:16pm on September 23, 2010, Sarah Hobbs said…
- Did not get drawn in the lottery. Have learned though that when God closes a door he has something else in mind that is better
- At 1:34pm on September 23, 2010,
Scott Orn said… - very funny w/ "bit on the spazzy side" - :)
- At 7:54pm on September 21, 2010, Scott Orn said…
- I'm having a really nice day. Thanks for asking, and you?
Thanks for inviting all those people. People seem to find each other on Facebook and then they move over to this network. It's nice that you made them feel welcome.
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