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Christopher Rogers left a comment for Desiree Wilcox

I was reading some thread posts in the TN patients in their 20's group and came across one you wrote. I too, have TN flare-ups cause by talking. I had a job a few months back at a call center doing inbound calls for a Tech Support…

May 16, 2011

Ally Castellano left a comment for Desiree Wilcox

yes I am on facebook!

Jul 17, 2010

Desiree Wilcox left a comment for Ally Castellano

I work at the cafe at barnes and noble -- are you on facebook at all??

Jul 16, 2010

Ally Castellano left a comment for Desiree Wilcox

I hope your day at work went well. I know there are days when my body just shuts down, both from meds and pain. Where do you work? I teach dance lol so it kinda stinks. TN really likes to get in the way!

Jul 15, 2010

Still not sure! But on a couple medicines and starting work back up today.. this should be funn :/

Status posted by Desiree Wilcox Jul 15, 2010

Desiree Wilcox and Rick Smith are now friends Jul 15, 2010

Desiree Wilcox left a comment for Ally Castellano

Yepp Im in college. Im going for psychology and business. I am currently applying to grad school to get an MBA but it has been a slow application process since the pain started.. I need to get it done though! I hope I get this figured out before I…

Jul 15, 2010

Ally Castellano left a comment for Desiree Wilcox

Hey! I was on trileptal it helped some! Hope all the meds don't put you in another world lol. Yes, I am in/was in college. My pain flared up in november and I wasn't able to go back after thanksgiving. I had to take incompletes and then…

Jul 15, 2010

Desiree Wilcox left a comment for Ally Castellano

I am on valtrex for the shingles and trileptal.. and then hydros for pain relief that doesn't really work! So are you in college? I think I read that you were but couldn't finish due to your pain. Are you back in? Or going back in the…

Jul 14, 2010

Ally Castellano left a comment for Desiree Wilcox

I am sorry that he wasn't able to give you a direct answer. What meds did he put you on? Don't be suprised if MRI doesn't give you an answer. I have had lots and they never have shown anything, but then when I have surgery they see…

Jul 14, 2010

Desiree Wilcox left a comment for Ally Castellano

Heyy! So the neurologist still isn't sure, but he wants to treat me for both TN and shingles. If it goes away with the shingles meds (even though I don't have a rash!) he will stop the TN meds. But I am waiting for them to schedule my MRI…

Jul 13, 2010

Ally Castellano left a comment for Desiree Wilcox

I hope the neuro apmt gave you some answers! I have times where I am strong and then others where I fall apart. My birthday is Aug 23 and my goal is to be able to eat ice cream. I have not been able to since my pain got worse in November : ( keep me…

Jul 13, 2010

Desiree Wilcox left a comment for Ally Castellano

Hey! I have not been diagnosed yet, but I am seeing my first neurologist today at 1:30! I am nervous, but lately just pain killers are even helping! Soo I am hoping MAYBE its not TN, but I still get veryy bad episodes of pain about 1-2 hours apart.…

Jul 13, 2010

Ally Castellano left a comment for Desiree Wilcox

Hey..I am almost 21 too! I have had TN for 8 years though and 7 surgeries, but were you diagnosed? what is your pain like?

Jul 12, 2010

Lee left a comment for Desiree Wilcox

Hi Desiree,Welcome to Living with Trigeminal Neuralgia.I hope you find out you do not have tn but if you do,this is a great support group.While everyones symptoms of tn are a little different,I think it is a great idea you had to compare your…

Jul 10, 2010

Alana Cowell left a comment for Desiree Wilcox

Heya,I'm ok struggling with the hot weather though, bored of having to stay indoors all the time. Im studying A-levels at the moment at school and should be going to university in september next year. I think the neuralgia's triggered by…

Jul 10, 2010

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Please share your TN story with us...(How did your pain first emerge and then change over time? Were you ever misdiagnosed? Do you believe your pain was caused by dental work? Have you had unsuccessful surgeries or medications?): I have not formally been diagnosed with TN. I went to have my wisdom teeth removed... thinking that was the cause of the pain. The oral surgeon refused to pull my teeth because he believed my pain was not caused by dental problems, but instead, TN. That was when I first heard about it and I have been to many doctors to help with the pain until I can see a neurologist. I am still waiting for my appointment. I came here to compare my symptoms and hopefully find support.

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At 1:14am on May 16, 2011, Christopher Rogers said…: I was reading some thread posts in the TN patients in their 20's group and came across one you wrote. I too, have TN flare-ups cause by talking. I had a job a few months back at a call center doing inbound calls for a Tech Support group. I actually had to quit because the job was way too painful for me to cope with, even though that's the area of my expertise and something i like doing. So, i completely understand where you are coming from. Not only does it initiate an attack but once in one, i find talking makes the pain much worse. Even eating makes the pain worse. I often cannot even close my jaw for fear my teeth will collide and create much more pain!

At 9:15am on July 17, 2010, Ally Castellano said…: yes I am on facebook!

At 4:08pm on July 15, 2010, Ally Castellano said…: I hope your day at work went well. I know there are days when my body just shuts down, both from meds and pain. Where do you work? I teach dance lol so it kinda stinks. TN really likes to get in the way!

At 8:12pm on July 14, 2010, Ally Castellano said…: Hey! I was on trileptal it helped some! Hope all the meds don't put you in another world lol. Yes, I am in/was in college. My pain flared up in november and I wasn't able to go back after thanksgiving. I had to take incompletes and then slowly made up the work in the spring. I was not able to return to take classes in the spring. I was el/special ed, but had to drop sped bc it would take forever to graduate. I want to get my masters in sped/autism. what about you? are you in school?

At 7:48pm on July 13, 2010, Ally Castellano said…: I am sorry that he wasn't able to give you a direct answer. What meds did he put you on? Don't be suprised if MRI doesn't give you an answer. I have had lots and they never have shown anything, but then when I have surgery they see compressions. Keep me posted please!

At 3:49pm on July 13, 2010, Ally Castellano said…: I hope the neuro apmt gave you some answers! I have times where I am strong and then others where I fall apart. My birthday is Aug 23 and my goal is to be able to eat ice cream. I have not been able to since my pain got worse in November : ( keep me posted..I would love to talk!

At 5:35pm on July 12, 2010, Ally Castellano said…: Hey..I am almost 21 too! I have had TN for 8 years though and 7 surgeries, but were you diagnosed? what is your pain like?

At 6:40pm on July 10, 2010, Lee said…: Hi Desiree,Welcome to Living with Trigeminal Neuralgia.I hope you find out you do not have tn but if you do,this is a great support group.While everyones symptoms of tn are a little different,I think it is a great idea you had to compare your symptoms.Best of Luck to you and I think it is great you have joined.

At 11:16am on July 10, 2010, Alana Cowell said…: Heya,I'm ok struggling with the hot weather though, bored of having to stay indoors all the time. Im studying A-levels at the moment at school and should be going to university in september next year. I think the neuralgia's triggered by the cold for most people, its really unusual for it to be heat which is quite worrying. Only a couple of teachers now that ive got the condition but they dont fully understand what it is or how painful it can get. As for the treatment of it I was on 200mg of tegretol but had to stop taking it because it made my hands numb, should be going back to my GP soon to try a different medication and I might ask about having an MRI. I see below your having trouble with medication as well, hope you find a treatment that works for you soon.

At 9:39am on July 10, 2010, James Curley said…: Welcome Desiree,
yes, it is very common for people with TN to believe that it is tooth pain and many(including me) have teeth pulled unnecessarily. Before you meet with the neurologist I would suggest that you write down all of the symptoms that you have expererinced. I have experienced classic TN lightning bolt pain and electric shock like pain but not often. MY pain has been constant for the past 20yrs varying in severity. Also, the side effects of the meds can be difficult to live with. Some meds work for some and not others. Some people can tolerate meds that others cannot. I have been on many different meds over the years-had to get off a couple because of complications-got off one because side-effects were intolerable and others because they no longer were effective. I am lucky that I am currently taking a combo of meds that give me the best pain relief(by far) with the fewest side effects. Just hoping it stays that way. Let us know what the neuro says. Take care,
James