Ben Munoz's Page

http://www.youtube.com/watch?v=JPNEYYmhykw&feature=player_detailpage

 

 

Hi Ben!

It is exciting, yet very weird, to realize that there is a name to the "thing" that took over and completely changed my awesome and close to perfect life -I didn't know how awesome until life as I knew it was over. I've learned alot (Post Herpetic/Occipital/Trigeminal Neuralgia are among the many diagnosis's)and have so much to share that can really help the person in my footsteps but am still too ill too be an advocate for myself let alone anyone else. I promised my kids I would get better so that we could be together again but it has taken way too long and they no longer need me. So....because time is everything and every profile you get will lead to help for someone else, Id like to give you my number (714) 512-9208 if someone would rather call me because I haven't been well enough to finish the many times I have tried online. If you have any info on someone who can help me get my social security case approved Id be so appreciative. I've also started, but not been able to finish, looking into any financial help available to someone left destitute with a neurological disability . If you know of anything, please drop me a note or call me. (i had the intentions of wording this perfectly and prayed for a pain-free moment of clarity to write ...so I apologize for anything other than a positive note)...

 

Music is my favorite distraction from the pain and isolation. Thought you might enjoy this....

http://www.youtube.com/watch?v=JPNEYYmhykw&feature=player_detailpage

Hi Ben,

Just wanted to say how much I love the new "more" button that we can use to see even more of the latest activity. It's really great.

Thanks so much! Please pass on my thanks to anyone else who helped to make it happen as well.

Take care,

Chris

Hi Ben and thanks! I love it here. Im doing a lot better now thanks to everyone here, I don't think I would have made it this far without this community. I had so much TN pain but also a lot of pain came from not having anyone around who understood me and the pain I was having. I'm so glad I met you all. Question: do we have an awareness ribbon?

Hi Ben, thanks for the information. I hope my daughter just has dental pain also.  We shall see. As of now she still has a dull aching on a scale of 6 out of 10.  We shall see.  She has another apointment with her dentist in a coulple of weeks.

Thanks Ben, I have learned a lot from this site.  My Doctor never told my what type of TN I had, but after spending several hours on this site and others, I found out that I have Type I which right now is under control with meds, which I hope continues to work.

 

 

 

Thanks Ben, I am coming to terms with this illness but I am not going to let it run my life. I am feeling loads better today and managed to eat a proper meal tonight. Not just soup. I am planning nto go cycling at the weekend. I will wear a scarfe over my face now the mornings are a bit cooler. Should do about 20 miles if I am lucky.

 

I have found the community very helpful. It's nice to know we are not alone.

Thank you Ben. So far I have found the people so friendly and warm. They have been so informative all these months that I have "stalked" your site! I know I will continue to find informative and supportive information from you all with my dad's continued recovery!

Thanks Ben for the warm welcome.  I'm finding everyone very friendly.  This site has been extremely helpful in my quest to get a proper diagnosis for my mom.  It is comforting to know there is somewhere to turn for help.