We are patients living with Trigeminal Neuralgia, here for your support.
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Andy Anthony
- Male
- Austin, TX
- United States
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Latest Activity
Andy Anthony replied to Mommthekid's discussion '16 yr old daughter still having severe pain at incision site 6 weeks after MVD surgery' in the group MVD's
Hello,
I am glad to hear that the TN is gone, that is really the most awesome part as you look forward past this other pain.
I am no where near having any knowledge about medical stuff (disclaimer) However, having the pain in that specific…
Andy Anthony replied to VMarch's discussion 'MVD Surgery' in the group MVD's
Dear VMarch,
Every person has different results right after and up to months down the road. I am not even close to a doctor, but I would definitely speak to your neurologist and the surgeon. Unfortunately they both may say that you just…
Andy Anthony replied to Stef's discussion 'Are You an Atypical Trigeminal Neuralgia Patient who has been given a diagnosis of Atypical Facial Pain?'
I have been diagnosed with TN, ATN and some other version of TN, which escapes me right now.
My pain symptoms range from all sorts of variations of Burning, Clinching, jabs/stabs and worse of all the Lightening bolt episodes.
I am sorry that…
Andy Anthony commented on Kerry's group 'MVD's'
Wow Bob, every time I hear someone else s story, I feel like my situation is so much less painful (although it isn't physically). Good God, where is our help. I actually had an instance of Anaphylaxis (sp) Shock from Tegretol…
Andy Anthony commented on Kerry's group 'MVD's'
I have had TN type 1 and 2 and God knows if there are any other types, I must have it, since 1993. in 1999 I finally succumbed to the risk of MVD. Man was I relieved to find I was pain free for 2 whole years. Then sadly it has been back…
Andy Anthony replied to Anna Guarco Cheney's discussion 'MVD recovery' in the group MVD's
If your pain is past the point of Intolerable to the point that you can't stop cringing/crying or otherwise just short of jumping off a cliff, I Highly recommend it (more on this below). If medicines get the pain in control with minimal…
Andy Anthony commented on Kerry's group 'MVD's'
I had surgery many years and moons ago. The constant concern was with which Doctor you have your surgery with. Of the people I know that have had the surgery they did extensive research as did I. After my surgery I had 2 wonderful years of pain…
Andy Anthony updated their profile photo
MVD's
For members who either have had, are having or considering having an MVD! Somewhere where those having had MVD's can share their experiences with those who are considering getting this done.
Andy Anthony joined Kerry's group
Kerry left a comment for Andy Anthony
Hey Andy,
I just wanted to add my Welcome to that of Maeve's! Like Maeve - my TN is bilateral and I get both typical and non-typical type pain. I've had 2 MRI's that showed nothing helpful, and recently an MRA I'm still awaiting…
Profile Information
- What treatments have you undergone (or will undergo)? With what success?
- MVD, Muiltple drug changes and combinations
- Please share your TN story with us...(How did your pain first emerge and then change over time? Were you ever misdiagnosed? Do you believe your pain was caused by dental work? Have you had unsuccessful surgeries or medications?)
- Went to Dentist May, 1993 - Cleaning was performed, 36 hours I was in devastating pain. Pain has been extremely severe throughout the years - MVD saved me for 2 years - Various changes and dosages of Medications have helped. Most impacting help has come from my Chiropractor (She is my Angel)
- Would you like to recommend a doctor, therapist or a hospital?
- Dr. Patricia Gregg (Chiropractioner)
Comment Wall (1 comment)
- At 12:43am on October 3, 2009,
Kerry said…
- Hey Andy,
I just wanted to add my Welcome to that of Maeve's! Like Maeve - my TN is bilateral and I get both typical and non-typical type pain. I've had 2 MRI's that showed nothing helpful, and recently an MRA I'm still awaiting the results of.
I'm happy that you achieved a couple of years relief with your MVD - do you think you'd repeat the procedure again in the future?
Glad to have you on board Andy - you've got a background with your TN that I am sure will be very helpful to have here - everyones' just great, supportive & understanding - we've loads of info and we welcome new perspectives on TN. We all suffer this here with a good many variations - so your experiences will be invaluable to us all.
Looking forward to seeing you around site!
Best wishes to you Andy for a pain free day!
Kerry.
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href="http://americanataxianetworking.ning.com/">Ataxia (U.S.A.)
Atrial Septal Defect
Autism
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Hepatitis C
Lupus
Multiple Myeloma
Myositis
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
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