Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.

Alana Cowell
Alana Cowell
  • 19, Female
  • Northampton
  • United Kingdom
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Alana Cowell's Groups

Alana Cowell's Discussions

Facial numbness
3 Replies

Heya, was just wondering if anyone gets facial numbness. I have bilateral TN and last night I got this sudden strange sensation in the whole of the left side of my face, like something was pressing…Continue

Started this discussion. Last reply by Alana Cowell Oct 13, 2010.

 

Alana Cowell's Page

Latest Activity

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Muscle and nerve test tomorrow :(
Status posted by Alana Cowell Jul 20, 2011
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MRI was all clear, EMG test next week
Status posted by Alana Cowell Jul 14, 2011
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MRI on the 29th June
Status posted by Alana Cowell Jun 11, 2011
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Now seen my neurologist, MRI in about 4 weeks, if that comes back all clear then im going to have some electrical nerve conduction test
Status posted by Alana Cowell May 22, 2011
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2 Weeks to go until I see the Neurologist..
Status posted by Alana Cowell May 7, 2011
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Alana Cowell and Gary Carter are now friends Apr 24, 2011
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This summer is going to be torture
Status posted by Alana Cowell Apr 21, 2011
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6 Weeks to go until I see the neurologist
Status posted by Alana Cowell Apr 11, 2011
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TNs been more intense last 2 days, never knew such pain could exist! Im worried someone close to me wont be able to cope idk hw to help them
Status posted by Alana Cowell Mar 30, 2011
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Found out today my neuro is called Dr nithi and is the same one my mum had when she got ADEM
Status posted by Alana Cowell Mar 29, 2011
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FINALLY referral arrived today... I have an appointment with a neuro for 20th May.. 8 weeks away!
Status posted by Alana Cowell Mar 24, 2011
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Alana Cowell replied to Kate's discussion 'What triggers your pain?'
There can be many triggers and they are all different for many people. Many people have it triggered by the cold or wind. For me, my TN is triggered mainly by heat and loud noises. You need to try and learn what your triggers are so you…
Mar 21, 2011
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Alana Cowell and Gloria E. are now friends Mar 19, 2011
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Una M left a comment for Alana Cowell
Awww hopefully those pains go soon for you. Its so hard coping with this condition. Do you think your meds have helped at all? Keep chasing up your neuro appointment because i got a referal in may and nearly a year later I still have got an…
Mar 19, 2011
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Alana Cowell left a comment for Una M
Heya, things havnt been too good, been getting lots of random shooting pain in my arms and legs. Didnt get my referral to the neuro so went doctors today and ive got neuropathic pain and the doctor I saw (not my normal gp) chased up my referral…
Mar 18, 2011
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Una M left a comment for Alana Cowell
Hi Alana. Hw's things with u. Hope you're not having much pain. Did you get your neuroloigist appointment yet? Una x
Mar 18, 2011
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Has neuropathic pain and has another referral, this one better come through this time
Status posted by Alana Cowell Mar 18, 2011
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A group for United Kingdom members to make friends, share TN & ATN experiences and discuss health care issues specific to the UK.
Alana Cowell joined Ben's Friends Groups's group Mar 10, 2011

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Please indicate your membership type
Patient
What treatments have you undergone (or will undergo)? With what success?
200mg Tegretol (stopped due to side effects), now on Amitriptyline 10 mg
Please share your TN story with us...(How did your pain first emerge and then change over time? Were you ever misdiagnosed? Do you believe your pain was caused by dental work? Have you had unsuccessful surgeries or medications?)
It started in December 09, I started getting electric shock like pain in the right of my face around the forehead. At first the pain was only triggered when something made me jump or caught me of guard. But the pain got worse. Two months after it started I ended up at the doctors. The pain had become more intense and spread to the whole of the right side of my face, triggering a lot more often. The main trigger became heat and as it was summer it was torture!! The doctor put me on tegretol but only a low dose of 200mg because I didnt want to be too drowsy as I was doing A-level exams. Medication had to be stopped as it was making me extremely drowsy and caused numbness in my hands. Went to my doctor, came off the tegretol and.... nothing, my doctor didnt prescribe anything else to try (told me to just take neurofen). At this point I changed doctors. On seeing my new doctor she put me on Amitriptyline to take at night and got an immediate referral to a neurologist.
Would you like to recommend a doctor, therapist or a hospital?
I have yet to find someone to recommend in the UK

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Comment Wall (53 comments)

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At 1:39am on March 19, 2011, Una MUna M said…

Awww hopefully those pains go soon for you. Its so hard coping with this condition. Do you think your meds have helped at all?

Keep chasing up your neuro appointment because i got a referal in may and nearly a year later I still have got an appointment. Got the doc to ring about it in september and they said id get a letter by end of november but didnt get anything. Back to docs soon to see whats happened it. Seem to live in the health centre these days lol.

Take care

Una x

At 2:25pm on March 18, 2011, Una MUna M said…

Hi Alana.

Hw's things with u. Hope you're not having much pain.

Did you get your neuroloigist appointment yet?

Una x

At 7:54am on January 31, 2011, Matthew TabbMatthew Tabb said…
I can totally relate with a post you sent me. With you step dad poking at you and getting you irritated when he knows what is wrong. It makes me disgusted with him because while he's pretty much an asshole to everyone he saves most of it for the family. I've used that you wouldn't poke or make fun of a cancer patient for having cancer analogy many times. Hope it doesn't happen as much. They would probably deny it but I can tell my family has been trying to seperate themselves more and more from me since last June. Oh well, it makes me sad but I'm not going to beg them to stick by me or be supportive if they don't want to be. We'll see.
At 8:17pm on December 31, 2010, StefStef said…

Hello, Alana.

 

Your statuses really make my heart go out to you.  I hope you feel better, sincerely.  I am glad I clicked on your page.  You have the cutest black kitty!  I had one who looked just like it when I was young.  Aww . . . .wishing you a happy, and more comfortable, New Years.

At 10:46am on December 31, 2010, Liz K.Liz K. said…
Alana,
I'm sorry you had a bad night. I hope the pain gets better. But try to have a nice day today and a Happy New Year.
Liz
At 2:52pm on November 11, 2010, paul grantpaul grant said…
welcome to this site, I hope you are having a good day today, that is one of the ways I have learned to work thru my pain is one hour at a time one day at a time, this web site is filled with support and idea's keep looking keep asking questions.
At 8:20am on November 9, 2010, Melissa A. WilliamsMelissa A. Williams said…
so glad you finally got a good doctor! it makes a world of a difference when they are willing to listen and help!
At 6:30am on November 9, 2010, Bob SnodgrassBob Snodgrass said…
Good for you Alana! I am glad you got the referral!!!! : ) bob
At 6:03pm on October 31, 2010, Matthew TabbMatthew Tabb said…
Wow, I hate seeing this kind of story repeat itself on here which is lack of support from the ones closest to you and having to turn to strangers who actually understand what it is you're going through. My mother is pretty much the most supportive of me supportive as well as my step dad when stuff is going on but it seems like a burden(which I know I have been over the years, not on purpose of course) most of the time like when I feel really bad I just don't go around because he'll ask stupid questions that just get me spun up more. Like why are you twitching and not talking right. Kind of feels like he's just poking at me, he knows what is wrong. I mean you wouldn't poke at a cancer patient for having cancer. I think the same should be applicable here. I'm new on here but am glad I found it and like everyone else here I'm here for you if you need to talk to someone. I was young when I first got it too(21) so I know many, actually all of the feelings. Keep looking for doctors, you'll find one eventually. It took me 2 years. Just don't give up on trying. I wish you the best. Hopefully relief in some form is in your future. Take care.
At 6:52am on October 30, 2010, Una MUna M said…
Hi Alana.
Just wanted to check if you seen your new doc yet.
Hopefully he can be abit more supportive than your last doctor
Una x
 
 
 

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