TN Suffers in Wiltshire/ South West UK

Comment

Comment by smithy-lou on January 29, 2012 at 9:46pm

hi i live in the south east :]

Comment by lesley andrews on March 18, 2011 at 12:09pm

Hi Jon GP has put me on tegrotol which ive been struggling to get used to (sickness, tiredness, confusion) but it does seem to be controlling the pain at the moment. see a neuroscientist 6th of april at the radcliffe hoping for a miracle but dont think i will get one.

Comment by Jon Leonard on March 15, 2011 at 5:58pm

Hi Lesley, I don't know that much about TN, not even sure if I truly have it. I don't know Oxford that well, but I've heard that there is a good neurology centre there, (Radcliffe?) so I hope your getting some good care from your Doctors.

What treatments / medications have you been offered? Have they helped at all?

Jon

Comment by lesley andrews on March 13, 2011 at 5:58am

hi all my name is lesley and i live in abingdon which is just outside oxford I no its not quite wiltshire but hope thats ok.  I was only diagnosed 4 weeks ago so  want to talk to others that no all  about it.

Comment by Jon Leonard on June 24, 2010 at 6:28pm

I don't get out that much, my partner does the driving. We have been doing trips out, mostly on a family history trail, so have a few places to visit in West Wilts and Gloucestershire.
Days are probably better for me, if I could make it that is.

Comment by Greg Dunningham on June 12, 2010 at 7:54am

Just noticed I put PIN... I think that was very Freudian LOL
Greg

Comment by Greg Dunningham on June 12, 2010 at 7:53am

Hi Lisa, Jonathan & Darren
Being a newby I still have no pattern or idea of when pin will emerge. Been pain free for 36 hours and then wham 0615 today!!! Say no more, anyway gone now and just left with stinking headache as was really tired. I teach all the teenagers you cross the street to avoid duing the day so bit tired in the evening. Half terms are great and sometimes week-ends but depends where everyone is... and hopefully no one will be in pain during the meet!!!
Anyway nice to touch base with you guys... May The Pills Be With You!
Love and wotsit
Greg

Comment by Lisa Higgs on June 12, 2010 at 4:32am

Im not doing too bad at the moment, but I dont want to tempt fate!!!!

Im going to sort an afternoon/evening out for a get together of TNers, if any of you are interested - would day or evening be better???

Let me know your thoughts and I will put some date suggestions on here

Hope you are all painfree today xxxxx

Comment by Jon Leonard on June 11, 2010 at 5:15pm

Hi Darren, Greg and Lisa,
How are you all coping with this fine weather we're having?
I can't take too much heat or too much cold, I think it's called the Goldilocks Syndrome.
Jon

Comment by DARREN WATTLEWORTH on May 20, 2010 at 3:41pm

The tn pain have moved on to my left side the now what a nightmare!!!!!! now the pain has just this last hour gone 9pm how can this be!!! it attacks you then disappears with out a trace, not looking forward to my next attack!!
hope your all well.

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