We are patients living with Trigeminal Neuralgia, here for your support.

TN & Parenthood

Information

for mothers and fathers with TN or dads/moms-to-be with TN

Members: 64
Latest Activity: on Wednesday

Discussion Forum

Newly diagnosed single mom 3 Replies

Hey all... newly diagnosed and a single mom to an active 13 year old. It has been hard on her to hear "mom is in pain, can't drive." She is a serious dancer, spending about 20-25 hours in the…Continue

Started by Lisa (iamrite). Last reply by Stef Feb 1.

protecting children from the pain we expereince 5 Replies

hey everyone, im just wondering how you all approach tn with yourchildren.... Im finding it really difficult to even tell me girls whenim going to the doctors or hospital, I just say im going out for…Continue

Started by Janine. Last reply by Jen Nov 20, 2011.

How to still be supermom when your in pain. 1 Reply

TN is like Krytonite to me. I have five males in my home that depend on me heavily. Four boy and a husband that is very good with taking care of me. When I am in pain ,I find that I miss…Continue

Started by Josie Jackson. Last reply by Stef Feb 16, 2011.

how to prepare you young kids for the MVD operation

hi i have three young kids 9 yo daughter and 6 yo twins and i have just been booked in for the MVD operation, is there anyone out there who has young kids and have gone through this operation?????…Continue

Started by Kerri Lipschinski Nov 20, 2010.

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Comment by susie evans on December 20, 2011 at 5:37pm: Hiya, I have a 10 month old son and I was diagnosed 2 1/2 years ago, I stopped all meds when I was pregnant and thankfully had no problems until he was a month old. In the last week things have got to the worst they have ever been, I'm now on gabapentin cos everything else makes me so tired and with my baby, sleep is not an option but the attacks are just getting worse, I'm greatful he's too young to understand but so angry that I'm struggling to be a proper mummy :( x

Comment by elesea on December 18, 2011 at 10:27pm: its just good my children are grown up now when this TN recurred, but it made me feel alone to suffer coz my son who is with me treats me as if i have no TN. I have to do all things as if I am okey and go back to office to work. I

just grew tired explaining again and again my pains.

Comment by Tonja Morrison on April 26, 2011 at 10:50pm: My husband thinks I may have tried to explain a little too much to the kids. My daughters nerve made her drink too much juice the other day and my son put his winter hat on sideways to cover his face just like me so his nerve won't feel bad!! God thank you for these little things to make me laugh!

Comment by Debbie on January 24, 2011 at 6:53pm: Tonja - you made me smile. My house looks the same! I feel so guilty but what can I do. I sleep so much of the time.

Comment by Tonja Morrison on January 24, 2011 at 6:04pm: I have two children ages 5 & 6 they know mommy isn't well but I try to function to the best of my ability. My house however suffers it's like a bomb hit it but I just don't have the energy. Living in this cold weather is not helping things. It breaks my heart that mommy can't play outside in the snow! I just try to smile and make a lot of jokes, it's the best medicine for me.

Comment by ANGEL MITCHELL on November 3, 2010 at 10:53pm: I am new to the site. I also can relate to everyone. I have three children (ages 11, and 5 (twins)). I work full time and am the childrens leader/sunday school teacher at our church. I was diagnosed with TN 18 months ago. I try to stay as active as I can with them, but it gets very difficult at times. Sometimes I simply can not do it. It is just heartbreaking.

Comment by kristen best on October 30, 2010 at 11:54pm: I can relate to all of you. I use to play with my children outside all the time. playground, bikerides, beach, ect. Now they ask me to play and I have to tell them I cant. I cant do anything physical or the pain just gets worse, the only time it leaves is when im sleeping. Its sad to see my 6 year old pray "for the day that God will heal my mommy and she can play and do fun things again with me". I also am always grumpy and frustrated. I use to be so laid back and mostly happy and had a lot of patience with them. Its hard to see how much TN has changed my life and my childrens life!

Comment by Carissa Rinner on October 21, 2010 at 11:35am: Hi I'm new to this site, still getting used to it. I was curious if anyone went through pregnancy and TN. I'm currently trying to get pregnant and am scared of being on so many pain killers and growing a baby... if anyone one has any suggestions or personal experience it would be great! THANK YOU!
Carissa

Comment by Linnette Lee on September 15, 2010 at 12:03am: Wow reading the other posts sounds just like me. I have a 10 yr old daughter. We did everything together, rode bikes, scooters, colored, and I was super Happy all the time before. Saddens me writing this now I am a grumpy twitchy ball of pain nearly everyday. :( I have gone a full 360 I can't sleep, when I am awake I am irritable. I try really hard to pretend that it is all okay, that the pain is not killing me, but all of us that have it know it is horrible and eventually my family knows just by my mere mood. Pain is a horrible devil. I just can't figure out what I did to get this punished, As I am sure you all have asked that question as well.

Comment by Tracy Donovan on August 4, 2010 at 2:53pm: I am full of guilt as my son asks me to go out and do outdoor activities (he is 11 and I completed the London marathon in April this year before I got TN and the pain has stopped me doing anything at the moment) he has always known me as active and now I am grumpy and drowsy from the meds. He has asked to go to his Dads this week and I know he usually does but cant help thinking he wants to get away from me!