TN and TMJ Disorders

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Comment by typqueen on April 1, 2012 at 9:04pm

I have read many times that TMJ can aggravate the trigeminal nerve.  It never said caused it, but obviously, it's all in the same place so it would make sense if the TMJ is inflamed, the nerve is not gonna be happy.  From what my doc told me, it's not uncommon for someone to have both, but that doesn't mean you don't have TN.  Yeah, unless the pharmacist is a personal friend of yours, or is talking from some personal experience, it's not his or her place to give her medical advice.  That's way out of line.  Jerry - sorry to hear about your pain coming back. That stinks.  Thinking good thoughts for you!

Comment by jerry on April 1, 2012 at 8:55pm

Update. I got my mri results back and showed tmj and sinusitus. I took antibiotics for a month which ate my stomache alive but I didd feel better. Now a week later I am getting it all back again. Looks like its going to be surgery. Damn it

Comment by Porcelina on April 1, 2012 at 8:46pm

I went to refill my gabapentin prescription, telling my pharmacist that Tegretol put me in hospital so hopefully this works and the only other option is Lyrica (which is not funded here, have to pay full price) ... and he was saying do you have TMJ which I do. He then swore black and blue that TMJ causes TN and that it very well may be the cause of my problems (also asking if I had had dental work - last teeth that were pulled were my wisdom teeth about 16 years ago!) ... and that I should try TMJ exercises and it'd take away the TN. I tried not to shake my head, maybe TMJ is a precipitating factor but surely all the pain further up wouldn't be caused by TMJ? Who knows. Sounds like he shouldn't be giving that sort of advice tho!

Comment by jerry on February 13, 2012 at 1:56pm

Thanks janet. I have the same problem with the er. I am 34 with tats and nipple piercings. My doc also refuses to give me breakthrough meds as well. I only get 2 30mg ers a day. On a good day I can go thru at least 8. It is very frustrating not. Having any understanding from them. I hope you find a better doc. It is hard forme being on medicade they treat you differentley because of that too. It has been about 5 yrs of hell for me so far

Comment by Janet Elg on February 11, 2012 at 1:30pm

ODSP isn't anything you have to worry about living in the U.S.  ODSP is Ontario disability support program.  Tegridol didn't do anything for me either and I had many doctors tell me its the only thing for TN for 8 months I kept sayin it isn't working so they just upped my dose for almost a year until one doctor finally suggested Neurontin.  Ask about Neurontin-gabapentin, granted i take 7 300mgs of that a day, but it did really help the twitching attacks. 

Personally I did nerve blocks and they made my TN pain worse but everyone is different.   Not everyone with TN needs surgery.  I have a splint that I wear everyday and night.  It helps sooo f-ing much u have no idea. lol 

When I started seeing a pain specialist we did nerve blocks for 2 months even though I told him it made it worse everytime.  He kept saying the only thing for my type of TN would be opiates.  I didn't want to be another person addicted to oxy's.  Finally I broke down and we started opiates.  I forget what the first one was, it helped for a week then lost effect, next was morphine, again it helped for a week and stopped working and then made me insanely itchy so now I know to never let a dr give me morphine. 

Then they started me on Dilaudid.  OMG!!! The relief I got was immense after 20 some years of daily pain.  Granted I still have a certain amount of daily pain but its allot less.  I've been begging for something for days of break through pain but they say if its bad enough go to emerg.  Everytime I've gone to emerg for pain, they look at me like a pill seeker because I'm only 26 and have facial piercings.  So I go home mad, still in pain and depressed that they wouldn't help me.   Anyways, I hope that was helpful Jerry. 

Comment by jerry on February 11, 2012 at 8:39am

What is ospd?I am going for mri of jawjoints in a few weeks from now. Hopefully I will get some answers then. I told my doc if it did not show anything which I know it will that I will get the nerve block done. I really want that to be a last resort. I stopped taking my tegridol it actually seemed to be making me worse. I still can't get my doc to give me strong enough pain meds so I suffer a lot. Even if it shows slipped discs I am terrified of jaw surgery. I have never heard any good storys about that. I am going to find a different nuerologist also the one I have been seeing is no help at all.anyone know a good tn guy in chicago area that takes medicade?

Comment by Janet Elg on February 8, 2012 at 12:14pm

I was denied 2 times before I got on ODSP.   Being on ODSP makes things so much easier, ur not worried about if your face with hurt for a month and u can't work.  Its a long difficult process but well worth it.  The more doctors you can get on ur side the better.   And if you take a calender and write on each day how much pain you had and for how long, that helps.  My dad is embarassed that I'm on disability and he thinks I'm a hypocondriac, thanks dad I love you too.  If 2 different neurologists think I have TN than I must have it.  My family doctor helped me fight to get on ODSP  and seeing a pain management specialist helps too.  Since getting on ODSP I got my own apartment and am raising a puppy to become a service dog.   So atleast I'm doing something good with my time.   There is a group about the ODSP fight but they didn't have it while I was going through my fight. 

Comment by Janet Elg on February 8, 2012 at 11:48am

That's awful.  I don't technically have TMJ.  When I had braces they put these "posts" on two of my teeth to stop me from biting off my lower brackets.  And having those 'posts' on for 2 yrs really over worked some muscles and ligaments.  And after I got my braces off my bottom jaw would slip out while i'm talking and my front top and bottom teeth would smash into each and it hurt like bugger.  And for 10 yrs I've told ppl something wasn't right but it wasn't until recently i got it looked at because I couldn't afford a splint until now.  Not that I have my splint my jaw hardly ever hurts.  I love it.   My TMJ is bilateral and so is my TN.  It took me along time to get diagnosed with TN because its on both sides and because I'm only 26.  But I was persistant and got diagnosed and on ODSP.  

Comment by Janet Elg on February 8, 2012 at 11:12am

Yes there are people that got TN after an oral surgeon was removing wisdom teeth and nicked the nerve.  And my TMJ was cause by an orthodontist that didn't listen when I told him many times my jaw hurt.  My dentist that is treating my TMJ says the way that my orthodontist straightened my teeth caused my TMJ.  As you can imagine I was pissed.  Do you think thats what happened to you, Jackie F?

Comment by jerry on January 8, 2012 at 12:11am

I forgot to add it has been mostley a sharp pinching above my eyebrowe and pain in the top back teeth and jaw in the tn nerve area it feels like a straight line of pain from the nerve to my eye. Is your pain simialer?

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