Thank goodness it wasn't too hard to find tons of material about the connection between lupus and TN.
Dozens of pages of articles that discuss lupus and cranial nerve damage
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Permalink Reply by Judy D'Arcy-Evans on April 21, 2011 at 6:36am
Permalink Reply by Sheila W. on April 21, 2011 at 10:58am I just googled Autism and TN and sure enough there is a familiar connection there too.
Permalink Reply by jujubeee on March 26, 2012 at 12:09am Sheila, that totally helps when doing research. I do it too. Also you can do a search (control F) of the page. I have lupus and TN too, and I am convinced it is from blood vessel inflammation in my cranial nerves. I also have had "burning mouth syndrome", also from cranial nerves, distortions of taste and smells periodically (usually lasts for months at a time), Bells Palsy twice and headaches. I'm prone to vasculitis and have a history of peripheral nerve problems, which has been worsening since my dx of lupus a few years ago.
That's a little too coincidental for me! I'm going to play around at these groups and start a lupus and TN group here. Already I know of about a dozen lupies who have this problem. Also not a coincidence.
Love Julie
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