Neurostimulators of any kind...

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Moderator Comment by Richard A. "Red" Lawhern on Tuesday

AK5150k9 has written to the group at large:

Hello to all. I am considering placement of a Motor Cortex Stimulator so I wanted to join and find out as much as I can.

Janice

=====================

I suggest you contact Dr Ken Casey, now co-chair of the Medical Advisory Board of the US TN Association.  Dr Casey I believe has done several procedures with motor cortex stimulation and is fully conversant with the state of research.  There is a link to the TNA Providers page at the top of our "Find a Doctor" page here on Living With TN.  He practices in Michigan.'

Regard, Red

Comment by kwebster on April 18, 2013 at 6:32am

Rick so glad you are getting your trial, the two surgeries are different trial from the permanent one thing to consider what kind of stimulator are you getting? Mine is a St Jude,

Comment by Notafraid on April 18, 2013 at 1:33am

Rick, please add comments on how your trial works out for you. I would very much like to get off drugs so my life could return to a more normal range.

Comment by rick on April 17, 2013 at 8:17am

I have trial set for May 1st @ Mayo Clinic, nervous and excited as my pain Dr and headache Dr feel it is my last hope for relief. Have ATN, occipital neuralgia and chronic migraine. Only relief has been botox, hoping neurostim brings me some relief. Any advice?

Thanks

Rick

 

Comment by LaDonna J. Young on January 12, 2013 at 10:35am

Hi, I've had the stimulator since 2008, It has the battery in my chest and the lead go up behind the ear,  one lead to back of my neck, also across my forehead with one lead above each eye above my brow. I do still have pain, but when the battery is low I know it immediately because the pain comes back very intense. So I would say it does help stop a lot of the pain. Glad I have it,  Oh, and NO you can not have MRI's anymore. Good Luck

Comment by Nomad on January 12, 2013 at 9:13am

Can you have a cat scan of your head and neck after having a neuro stimulator inserted?

Moderator Comment by Richard A. "Red" Lawhern on December 8, 2012 at 9:49am

Lisa, et al, I would welcome your input concerning your experience with neurostimulators, and the medical providers who have performed your surgeries to implant them.  This is a branch of treatment with which I have not had a great deal of success in recovering authoritative papers on outcomes from medical literature. Feel free to send me site email or to correspond via lawhern@hotmail.com

Regards all,

Red Lawhern, Ph.D.

Resident Research Analyst

Comment by Lisa26 on December 8, 2012 at 8:41am

I had to have another surgery on my peripheral nerve stimulator. This is the 2nd time it had to be fixed since August. The battery keep wearing through the skin right in the corner of the battery. In August it completely came through the skin and I got a horrible infection and the whole system had to be taken out.. After weeks of antibiotics it was replaced. Again I started noticing an area where the skin was getting thin and darkened so I made an appointment and got right in this time. On Tuesday I had surgery to fix it. He made a deep pocket for the battery the edge of it is in my armpit. The incision line is about 1/2 inch above the battery. The surgeon thinks maybe I am allergic to the silk anchor stich he uses just in that area so he used a different material stich this time. I am praying my body will just accept it this time. The stimulator has been such a blessing for me. It works so well and has made it possible for me to work and enjoy most of my days!! I went back to work last night. Only 3 days post op. YES..I am crazy!! I had to though because I don't have anymore paid time off. I made it through the night but, now I am in so much pain. I am frustrated and so tired of dealing with pain.. I wonder if anyone else has ever had a problem like this with your stimulator?

Comment by kimik0206 on November 9, 2012 at 4:08pm

Rick, Mine is also from an Aneurysm Lmca ,V1 & V2  are permanetly damaged from that surgery and another surgery I had to try and "fix" my pain.  They tried to sever my nerves and all they did was damage the trigeminal nerve worse.  I am 4 days post op from my  implant surgery.  I am doing great.  I still have some pain, but NOTHING like what I had before.  And I believe with some tweaking of my levels I will have even less pain.  So far I have to say I highly recommend it.  If you have any questions please ask. 

Comment by kwebster on November 8, 2012 at 7:58pm

Hi rick sorry to hear you are part of this group I had mine a st Jude unit implanted dec 2011 not a lot of questions for you to ask other than how soon can they get you in! You will have a trial before the implant to make sure it works for you it doesn't make you pain free but it helps tremendously I was able to return to work after three years of failed meds etc mine is in the v3 so it is even harder to get pain relief there I am extremely happy with my results any questions feel free to ask I also have nerve damage however mine was done by an oral surgery gone wrong I take only Alec's or Tylenol for pain now

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