Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.

Had mvd surgery almost 4 ths ago. i have lingering problems including the numbness on half the face and now dry eye problems from it. teeth are very sensitive since the only thing you feel is the teeth not the gums. Looking for others who have had to face this and how you managed to do so. Looking for any help or suggestions on coping and any new treatments that might help.Thank you and to better days ahead

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Hello everyone,

 

I finally updated my profile.  I had MVD (right side) on January 10.  It is very near the one month mark.  The incision is healing nicely. I am recovering but do tire easily .  The biggest "annoyance" is my right ear.  I have a feeling of "fullness" or that it is "plugged".  It is always plugged feeling and much of the time I can hear "feedback" when I talk...(hear my own voice in my head on the right side and can hear myself breathe).  Has anyone else experienced this post MVD?  If so, did it resolve itself with time OR ?  The neurosurgeon will refer me to an ENT in a couple weeks if it doesn't resolve itself.  At this point I don't know if it will.  I am trying to be optimistic but it certainly isn't getting better.  It is driving me nuts.  However, it is a small price to pay for the possibility of a better quality of life (I keep reminding myself).

11 days post MVD - previously right sided maxilla TN pain - that pain has gone, I have some numbness on the R side inside my mouth, tongue and teeth, also tip of my ear is numb, some tingling of my lower lip and corner of my mouth, bit of an earache and slightly worse headache today, happy I am able to eat and chew normally.  Wound staples removed yesterdayso some tenderness today.  Managing on panadol for pain relief.  So far so good!

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