Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.

I had my MVD surgery 9/30/2011. I feel I am doing well, but I don't think patients are given enough information to know what to expect Post Surgery.Right now I am having sharp pains in my right ear - is that normal? Do I call my MVD surgeon? Do I call my family doctor? Why did my doctor send me home with no meds. "Just take tylenol". Well... there are days that the headache is so bad, tylenol just is not enough. Is this normal to have no meds?

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I am at work and I do bend at little and I try not to lift anything too heavy.   I wish I got this done in January or sooner then I would have been better now when our busy season is coming!  We are getting more help in to help me out for now.   My finance doesn't seem to understand all of this.  He wants to know why I am on my meds still and why I am so tired!  I am going to let him talk with my doctor to let him explain why. 



doowni said:

I had my MVD surgery on 8/22/11. I am just now feeling really good and feeling that the surgery was worth it. I was taking 2 anti seizure meds. I am now almost tapered off the second. I still have a few pains at the incision site. I was sent home with some heavy duty pain meds , which i took only when i really needed it. I suggest you call the surgeon and talk to him about your pain.

My surgeon is wonderful. If anyone has any questions about MVD surgeons you should google Dr. Jeffrey Brown in New York.

My daughter went to her neurosurgeon but he felt that this was an admission that he did something wrong and he was no way going to admit to that so she went to her regular doctor and he had never seen her during an episode of TN pain so he wouldn't give her anything strong enough so she went to emergency during an episode and they gave her percocet but when she needed a refill they treated her like a common street adict. My daughter is 45yrs old and has never smoked, drank or done any kind of drugs that wasn't prescribed for her.

Unfortunately these days drs are so afraid of pain meds due to the amount of abuse. I was in the ER once...now mind you I am a Police Officer ......they were giving me a hard time until they saw an episode come on them all of a sudden they were quick to get me meds....if I were your daughter I would go to another nuero surgeon or neurologist....this is her life, she is in pain and like it or not we have to fight for what is right sometimes

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