MVD's

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Comment by Janet L Ditslear on August 30, 2010 at 7:02pm

On day five post op from having mvd surgery. Doing well, just resting and recovering. The doctor, Dr. Payner, Indianapolis, found 1 larger artery and one smaller artery wrapped around my nerve. Everything went well and I'm very happy that I went through it...it would probably have gotten worse over time...still groggy...but only on advil and tylenol...

Comment by Gina Berg on August 29, 2010 at 10:16pm

I've scheduled my surgery for 9/22!

Comment by Janet L Ditslear on August 24, 2010 at 10:01pm

I am new brand new to this website and I am having mvd tomorrow. Very nervous, but I have struggled with medication for 6 months and in the hospital twice for medicinal reasons. The pain is coming back, not electrocuted yet, which in a way if I were jolted just once, the surgery couldn't come soon enough. We've done a lot of research and the surgeon offered this, "you didn't try Lyrica, but you need to discover and decide by yourself when you've reached your threshold." We'll , with much prayer, and struggling with my health for the last six months, I am ready with God's help. In hindsight, I have had TN since 2003, with remission in 2003 until 2006, and it came back this year in February with gusto...any advice for last minute jitters. I've only had my tonsils out when I was eleven!

Comment by Connie on August 19, 2010 at 3:42pm

Hi Gina
I had MVD in May 2009 and haven't had any nerve pain since the operation. I had two MRI's and neither showed compression. I went eight years trying to control the pain and then having pain, increasing meds and still having pain. I was so afraid of having the MVD. Now I really wish I had not wasted eight years in so much pain and on so much medication. When they tell you if gives you your life back - they mean it. I was fortunate to talk to a man who had the MVD two years previous by the same neurosurgeon I was going to. He told me to go for it and don't look back. He wa right. This last year without pain is amazing. The only advise I would give you is make sure the neurosurgeon has alot of experience in this operation. I think that makes a difference.
Good luck
Connie

Comment by Gina Berg on August 19, 2010 at 3:07pm

Thanks for everyone's comments! It is certainly nice to hear success stories. I struggle because I know MVD has been successful for so many people and that is what I hope for, but there are also the unfortunate handful of people that get MVD and experience complications or still have pain after surgery. I appreciate everyone's feedback and support.

Comment by Kirsti Leeder on August 19, 2010 at 2:55pm

Hey gina, I would advise MVD, I too was diagnosed very young, only unlike you I waited years before I had mine, I wish I had had it earlier. I am almost pain free on that side and had my MVD in april 09. I am currently experiencing pain on the other side now as I suffer Bilateral TN and waiting to see neurosurgeon in November.....if he, as my GP suspects, offers me MVD I will take it , lots of luck xxx

Comment by Suzanne Marriott on August 17, 2010 at 10:45pm

Hey Gina, I'm sorry to hear that you became a member of our "club" at such a young age. Not that it is good to have at ANY age. I am one of those who suffered for years before finally having MVD on June 16th this year (2 months ago). I was told by 2 different neurologists that MVD wouldn't work. I read so many other accounts from people here who had the same symptoms I did, and had successful MVD surgeries. I finally went back to my GP and asked (begged, really) for a referral to a good neurosurgeon who had done hundreds of these surgeries. He told me I was a candidate for surgery, so I went for it. My TN pain is gone, and I no longer take any of the meds I was on for TN. I also had awful side effects with those... and still had lots of pain. I don't think it's too soon for you to have surgery. Eight months is plenty of time to know if meds are going to control it or not. There are risks, of course. You will need weeks to recover before going back to work, but then I'm guessing you haven't been feeling all that great with the zaps-to-the-head pain you've been living with. My biggest problem since the surgery has been feeling tired and weak, I can't unload 120 lb. bales of hay like I used to but it's getting better. Also, I awoke from surgery with double-vision. I still have it to a certain degree but it is getting better also. I have trouble with depth-perception, so I'm not real confident when driving. This is a rare complication caused by damage to a nerve controlling an eye muscle, and the doctor said it will go away in time. The good news is, the pain from the surgery never hurt as much as the TN pain! Good luck!

Comment by jamie leigh on August 17, 2010 at 8:56pm

My experience was the same as yours. I suffered with the pain and meds for just five months before my MVD.

Comment by Gina Berg on August 17, 2010 at 4:20pm

Am I being impulsive?

I was diagnosed with TN at age 26 in December immediately upon describing the symptoms to my doctor. It's only been 8 months and we are ready to move forward with MVD. I know everyone is different but I hear about so many people waiting years before getting surgery done. Am I being too impulsive? I just want my life back. I've tried 3 different meds and maxed out the dosages on them - all with terrible side effects and still feeling pain. I've done a ton of research, read tons of blogs and posts, I just want to make sure I have all my bases covered. I know this is NOT something to take lightly. I want someone who actually understands what I'm facing to play devils advocate with me instead of my family saying "they support me in anything I want to do." Thoughts?

Comment by jamie leigh on July 30, 2010 at 7:51am

Thank God for Lily feeling better!!!!!!

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