We're here for your support.
Meds and doctors orders. He said she said, it's not working! Tips~
Information
The pain doesn't stop and the doctors don't help. All we are given are meds and sent home! Why?! Then, we have the other side of the coin, the doctor
Members: 19
Latest Activity: Mar 8
Communication Tips with your Doctor
approximately half of the U.S. population cannot
understand and use the information provided by
their clinicians. Whether a language barrier or other
communication problem, this group may be at risk
for:
• Misunderstanding healthcare instructions,
prescriptions, and appointment slips
• Poor health outcomes
• Increased healthcare costs
• Medical errors
Behaviors and responses from patients that further
create problems are:
• Patient registration forms/history that are
incomplete or inaccurate
• Frequently missed appointments
• Noncompliance with medication regimens
• Lack of follow-through with laboratory
tests, imaging tests, or referral or consultants
• Patients say they are taking their
medications, but lab tests or physiological
parameters do not change in the expected
fashion.
• Patient unable to name medication, explain
its purpose or timing of administration.
At the end of each office visit, a patient should be
able to answer the following questions:
• Where do I go for tests, medicine, and
appointments?
• How should I take my medicine?
• When do I take it?
• What will it do?
• How do I know it is working?
• Whom do I call if I have questions?
Other instructions may include:
• What to do. How to do it. When to do it.
• When do I need to be seen again?
• Do I have another appointment? If so, what
is the date and time of the appointment?
• Are there phone numbers to call?
This sounds basic, but as a SG Leader you would be
surprised what people do and do not know. Help
your doctor help you.
It's amazing how many questions we don't think to ask and how doctors leave it to us to make sense of it. only problem is, many can't.
I have a combo of conditions. What I'm hoping to do is figure out what exactly are the TN probs vs other probs that magnify TN.
anyone out there who can tell me if TN in itself is just the pain? I don't mean to minimize the pain. I know how it is, I have TN. But I'm trying to separate TN from other conditions..
do tell ..... what do you know about TN?
Discussion Forum
Trigeminal Neuralgia - Mayo Clinic - How the brain works
Slide show: How your brain works Please click on "how your brain works" to get to the Mayo Clinic web site and more information. This is awesome and some have asked about this very thing. By Mayo…
Tagged: works, brain, the, How
Started by Ro ~ Feb 13.
TNA Reports: Headline News - educational documents
TNA - The Facial Pain Association and its fight against trigeminal neuralgia is now captured in a short form educational documentary. The feature will air on MSNBC, CNBC, Fox News and Discovery He…
Tagged: documents, educational, Reports, TNA
Started by Ro ~ Feb 12.
How does your brain work?
Your brain You couldn't work without your brain. It is responsible for everything you do - waking in the morning, remembering who you are and where you live and feelings of love, happiness or sadness…
Started by Ro ~ Feb 12.
TN Practice Guideline
Click Here for the Updated TN Practice Guideline, January 2009 Trigeminal neuralgia (TN) is paroxysmal(short & frequent)triggered face pain. Most patients respond very well to radiosurgery with…
Tagged: GKRS, Accelerator), (Linear, LINAC
Started by Ro ~ Jan 29.
Some various treatment options 1 Reply
Microvascular Decompression Surgery alleviates neurovascular compression by placing inert shredded Teflon® felt implants between offending vessels and the trigeminal nerve root. Percutaneous Rhiz…
Tagged: Balloon, Compression, Rhizotomy, Injection, Glycerol
Started by Ro ~. Last reply by Kerry Feb 5.
Radiofrequency (RF) and pulsed radiofrequency (PRF)
By Amy Price PhD Radio Frequency Ablation (Denver Pain Management ,2009) Radiofrequency (RF) and pulsed radiofrequency (PRF) neurolysis are techniques used to treat chronic pain that is transmit…
Tagged: (PRF), radiofrequency, pulsed, Radiofrequency
Started by Ro ~ Jan 29.
Another View: Trigeminal Neuralgia (TN)
What is it? TN is an extremely severe facial pain that tends to come and go unpredictably in sudden shock-like attacks. The pain is often described as stabbing, shooting, excruciating, burning, extr…
Tagged: United, Kingdom, MS, TN, Neuralgia
Started by Ro ~ Jan 20.
Stem Cell Transplantation Therapy for conditions possibly linked with TN
Treatment with Adult and Cord Blood Stem Cells Stem Cells for Hope, Inc. has an International Network of Clinics that are currently providing treatment programs for patients using Stem Cell solutions…
Tagged: Optic, Nerve, Damage, Dystrophy, Muscular
Started by Ro ~ Jan 20.
TNA-Microvascular decompression in patients with isolated maxillary division
HL UPDATE: 12/17/2009 Journal of Neurosurgery November 2009 Volume 27 Microvascular decompression in patients with isolated maxillary division trigeminal neuralgia, with particular attention to ve…
Started by Ro ~ Jan 14.
Comment Wall
Comment
-
Comment by alberto2000 on December 8, 2009 at 8:48pm - u are welcome my friend
-
Comment by Ro ~ on December 8, 2009 at 7:18pm -
I thought I'd share this. Yes, it's a battle but it's such an upbeat song ~
Thank you Alberto
-
Comment by Ro ~ on December 2, 2009 at 11:25am
- Trigeminal Neuralgia: CAUSES really surprised me how much more information there was about the 'causes'. well worth taking a look
-
Comment by Ro ~ on November 29, 2009 at 9:39am
-
Coping and support
By Mayo Clinic staff
Living with trigeminal neuralgia can be difficult. The disorder may affect your interaction with friends and family, your productivity at work, and the overall quality of your life.
You may find encouragement and understanding in a support group. Group members often know about the latest treatments and tend to share their own experiences. If you're interested, your doctor may be able to recommend a group in your area.
-
Comment by Diana Parker on November 20, 2009 at 4:10pm - Thanks Ro!
-
Comment by Ro ~ on November 20, 2009 at 3:47pm
-
BJ THOMAS Raindrops Keep Falling on my Head
-
Comment by Ro ~ on November 20, 2009 at 3:32pm
-
i understand that one Diana,. it is frustrating. I am lucky to have my daughter with me the last time i was with him. apparently nothing i was saying was making sense so he spoke with her. i got a tickle how she spoke in "medical terms" ~ and said so. She looked and me and said, that's what i went to college for. ha!~
Good luck with the insurance! I'm still battling that myself.
-
Comment by Diana Parker on November 20, 2009 at 3:18pm
-
You are very lucky Suzanne.
I am still waiting for my new insurance to go through.
-
Comment by Diana Parker on November 20, 2009 at 3:15pm
- Thanks Ro, hubby woke up ok took his new meds and is now sleeping on the couch and feels foggy. I wish I could call for him. The only time is when I go to an appointment with him, LOL the doc ask him, he talks then the doc asks for my input. I don't get it, if I am there, ok, if not can't do anything about it. Frustrating!
-
Comment by Ro ~ on November 20, 2009 at 1:54pm
-
hi diana,
that's a great idea actually and it took me a while to think of it too.. to call the doc when there are problems. this way they have a history. What i did is made a 'connection' of sorts with on of the receptionists and if it was something i needed him to call me about, she'd do that. if not and i just wanted them to know that something is going on and i'm iffy ~ i'd tell her to have him call only if there was something more that can be done. If it was rather bad, i go to ER. Each call i'd make, i'd ask they put it on record because i will forget to tell him if the time comes.
I believe that communication is so important. When i worked, i used to even fax info to the doc.
What I did was give my daughter limited power of attorney so in the event I can't make decisions, she would have the authority to speak to the docs etc. the docs also have a copy.
I wish you all the best.. it's great to have a doc u can talk to isn't it Suzanne?
Badge
Powered by Bensfriends.org
Learn more at bensfriends.org.
Patient Communities
*Aicardi Syndrome *Adrenoleukodystrophy (ALD)*Arteriovenous Malformation (AVM)
*Ataxia (International)
*Ataxia (U.S.A.)
*Brain Aneurysms
*Chiari Malformation
*Crohn's Disease
*Fibromyalgia
*Trigeminal Neuralgia (TN)
Links & Info
* State Pharmaceutical Assistance Programs (includes subsidies and discounts for seniors, disabled, uninsured and others) Updated: February 27, 2009 [INCLUDES 2009 MEDICARE RX BENEFIT FIGURES] * Trigeminal Neuralgia- Several Topics *Microvascular decompression (MVD) *Jawbone cavities and trigeminal and atypical facial neuralgias
*Neuropathic Pain in the Head and Neck
*Radiosurgery for trigeminal neuralgia and epilepsy
*Long-term efficacy of microvascular decompression
*Incidence and clinical features of trigeminal neuralgia
*Antiepileptic Drugs in the Management of Cluster Headache and Trigeminal Neuralgia
* Trigeminal Neuralgia Overview
* MCS Motor Cortex Stimulation
* DBS - Deep Brain Stimulation
* Drugs & Medications & Condition A -Z
* Mercy Medical Airlift
Pharmaceutical Assistance
* Medication assistance
* US Pharmaceuticals (Medicare)
© 2010 Created by Ben Munoz
You need to be a member of Meds and doctors orders. He said she said, it's not working! Tips~ to add comments!