GPN - No Voice, Chest Pressure

Replies to This Discussion

Permalink Reply by Elizabeth on January 6, 2011 at 5:45pm

Hi,

I don't feel that yet. I feel as if I have a sore throat and it goes away. I feel like pulling my teeth out a lot,it seems i get a shooting pain in my throat or one in my teeth and i think oh a root canal needed with an infected teeth. It has happened so much now i know pulling my teeth out isn't going to help. I also know it isn't a root canal. Last time I took more medication but realized I needed to actually go to the doctor and get antibiotics. I was sick in a different way with strep and sometimes I can't tell the difference. I hope you feel better and please go to the doctor to be certain ou aren't having a stroke or heart attack. 

Permalink Reply by Jackie M on January 7, 2011 at 8:07am

Thanks, Elizabeth

I will do this.  I already had a mini-stroke during surgery, so I might be prone to that. 

My throat feels like someone is pouring acid down it, but funny thing is, since half of it is paralyzed, I only feel it on the left side. 

I get pins and needles in the back left half of my tongue, too.  And just to make sure I know it's there, every once in a while, it feels like someone slams a nail through the back of my tongue with a hammer. 

If it weren't happening to me, I could almost look at it objectively, like . . . oh, that is so interesting . . . wonder what will happen next? 

I can't chew when I'm in that mode, either, too much tooth pain.  So, I drink protein shakes on those days.  But, my hubby makes them so good, with protein powder, extra peanut butter and chocolate, I gain weight!!!  I have to remind him, I'm really inactive when I'm laying in bed suffering from this.  (Like he doesn't know).  They're good too, it's like drinking a Reese's peanut butter cup. 

I'll keep you posted.  Thanks for your thoughts.

Jackie

 

Permalink Reply by Billie Conrade on January 7, 2011 at 8:20am

I did not get this feeling in my ribs. But, when I had the zapping nerve pain it went from my throat up the left side of my skull and it was excruciating. I was to the point where I could not eat or drink and if I tried it had to be with my head tipped to the opposite side (right).  GPN is so debilitating and I was ready to just die. I became a recluse and would not go anywhere because when I layed on the affected side the pain would go away. So, if I had to go to the Dr.s or somewhere else I had to get in the car and lay the seat down completely.

I know I am highjacking your thread, but I wanted to share what happened for me:

I was told for years here take this nerve med or pain med and it will go away. Which it would go away after several weeks and then come back months later. The meds NEVER helped me at all, just made me sick and not myself. The very last attack of GPN I had was 12 weeks straight with no let up at all. I was zapping EVERY time I swallowed even my own saliva.

I got back on the internet and started researching again. Someone on one of the forums told me to get checked for Eagle's Syndrome. I started to google that and OMG that was ME big time!!!! I went to a new ENT and insisted I had ES. He looked at me and he chuckled and told me it was so rare and that I did not have that. I started to cry and said all you have to do is order an xray to begin with. He felt sorry for me and ordered the xray and an MRI.

I went back to him for the results and he told me that I did not have ES. I asked him to please check again. I had had an MRI and I myself got the CD at the time of the visit and I measured my stylus bone on the effected side and sure enough it was much longer and curved than the unaffected side.

He called the radiologist who reads the xrays and talked to him for a very long time. I could hear the conversation somewhat. All I heard was yes, are you sure, no way, I am surprised. When the Dr. came in and said YES you have ES. I was hysterical. Finally a name and a reason for this nerve pain!!!!!!!

He said he had taken many stylus's out in his day, but he did not do that surgery anymore. So, he orderd a CT to make sure the jugular would not be in the way of an external removal of the tip of the stylus. And, he sent me many miles away to another ENT who had done these surgeries.

A few days went by and my appt. came finally. I met the new Dr. and he was CONFIDENT he could eliminate my pain!!! I was scheduled for tip removal of my stylus and nerve monitoring, this would be done externally. He said if I had internal done my tonsils would have to be removed and he preferred not to do this at my age of 42. The surgery was to be 45 min. tops.

I was in the OR for over 4 hours!!!! The Dr. could not locate the stylus from the extrenal route, so he did a crush puncture of the tip through my throat inside!  He told me the bone that was broken off was pressing on my 9th cranial nerve causing the GPN. He said that sometimes the bones just ossify (grow) as we get older.

I woke up with surgery induced bell's palsey, meaning my left side of my face was completely paralyzed. I could not close my eye, I drooled and slurred like I had a stroke. I was so devastated, but the Dr. reassured me that he had only over stimulated the facial nerve and it would come back as normal in a fews mts.

Having the paralysis was really hard, I looked like a freak in my opinion!!! But, 8 weeks later my face was back to normal and the GPN is gone! I had the surgery in May 2010 and to this day have had NO zapping pain or any kind of pain in my throat at all.

I am telling you this because there are reasons for this GPN. You just have to fight to find those reasons out. I really feel like I could have killed myself had I continued with the constant zapping pain. If you would like to email me, feel free. I will help you in anyway I can. bconrade884@yahoo.com Good luck to you!

Permalink Reply by Sally A. White on January 9, 2011 at 8:46pm

Billie,  AT first they thought I had eagles, and then decided GPN because it was happening constantly.  They took x-rays etc and said my stylus wasn't to long, do you think it would be beneficial to have new pictures done every so often?  It was under control for a little over 2 years and came back before Christmas.  Sally

Billie Conrade said:

I did not get this feeling in my ribs. But, when I had the zapping nerve pain it went from my throat up the left side of my skull and it was excruciating. I was to the point where I could not eat or drink and if I tried it had to be with my head tipped to the opposite side (right).  GPN is so debilitating and I was ready to just die. I became a recluse and would not go anywhere because when I layed on the affected side the pain would go away. So, if I had to go to the Dr.s or somewhere else I had to get in the car and lay the seat down completely.

I know I am highjacking your thread, but I wanted to share what happened for me:

I was told for years here take this nerve med or pain med and it will go away. Which it would go away after several weeks and then come back months later. The meds NEVER helped me at all, just made me sick and not myself. The very last attack of GPN I had was 12 weeks straight with no let up at all. I was zapping EVERY time I swallowed even my own saliva.

I got back on the internet and started researching again. Someone on one of the forums told me to get checked for Eagle's Syndrome. I started to google that and OMG that was ME big time!!!! I went to a new ENT and insisted I had ES. He looked at me and he chuckled and told me it was so rare and that I did not have that. I started to cry and said all you have to do is order an xray to begin with. He felt sorry for me and ordered the xray and an MRI.

I went back to him for the results and he told me that I did not have ES. I asked him to please check again. I had had an MRI and I myself got the CD at the time of the visit and I measured my stylus bone on the effected side and sure enough it was much longer and curved than the unaffected side.

He called the radiologist who reads the xrays and talked to him for a very long time. I could hear the conversation somewhat. All I heard was yes, are you sure, no way, I am surprised. When the Dr. came in and said YES you have ES. I was hysterical. Finally a name and a reason for this nerve pain!!!!!!!

He said he had taken many stylus's out in his day, but he did not do that surgery anymore. So, he orderd a CT to make sure the jugular would not be in the way of an external removal of the tip of the stylus. And, he sent me many miles away to another ENT who had done these surgeries.

A few days went by and my appt. came finally. I met the new Dr. and he was CONFIDENT he could eliminate my pain!!! I was scheduled for tip removal of my stylus and nerve monitoring, this would be done externally. He said if I had internal done my tonsils would have to be removed and he preferred not to do this at my age of 42. The surgery was to be 45 min. tops.

I was in the OR for over 4 hours!!!! The Dr. could not locate the stylus from the extrenal route, so he did a crush puncture of the tip through my throat inside!  He told me the bone that was broken off was pressing on my 9th cranial nerve causing the GPN. He said that sometimes the bones just ossify (grow) as we get older.

I woke up with surgery induced bell's palsey, meaning my left side of my face was completely paralyzed. I could not close my eye, I drooled and slurred like I had a stroke. I was so devastated, but the Dr. reassured me that he had only over stimulated the facial nerve and it would come back as normal in a fews mts.

Having the paralysis was really hard, I looked like a freak in my opinion!!! But, 8 weeks later my face was back to normal and the GPN is gone! I had the surgery in May 2010 and to this day have had NO zapping pain or any kind of pain in my throat at all.

I am telling you this because there are reasons for this GPN. You just have to fight to find those reasons out. I really feel like I could have killed myself had I continued with the constant zapping pain. If you would like to email me, feel free. I will help you in anyway I can. bconrade884@yahoo.com Good luck to you!

Permalink Reply by Jackie M on January 10, 2011 at 7:46am

Thank you all - I am researching Eagle's Syndrome.  I have never heard of it.  I have the tinitus in my deaf ear, the pain and pressure in the ear, the pain often starts just below or in the ear and goes to my throat, so lots to research.  Too bad we have to be our own diagnosticians! 

It's really nice, though, that you all are here for me and we are here for each other. 

Wishing you all pain free or pain light days.

Elizabeth - I've had 21 root canals and crowns, all to no help!  That was before I knew what was going on!

Jackie

Permalink Reply by elaine48 on July 2, 2011 at 12:03pm

i have chest pain as well as back pain.how do you get a gpn diagnosis/ i had a cat scan no contrast-showed tissue inconsistancies- nothing else.  what tests showed you could have surgery. sometimes i want to die.