We are patients living with Trigeminal Neuralgia, here for your support.

GLOSSOPHARYNGEAL NEURALGIA

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Other facial neuralgia

Members: 26
Latest Activity: Aug 14, 2011

Discussion Forum

GPN........depressed......scared............... 9 Replies

Here is my story: About 4 years ago (age 37) I started having shooting electric stabbing pains in the back of my throat. I could not swallow my own saliva. I became dehydrated and was admitted for…Continue

Started by Billie Conrade. Last reply by elaine48 Aug 14, 2011.

LivingWithGPN.org 1 Reply

BensFriends.org (led by Grace McKay) created a new patient community specifically for GPN. http://www.LivingWithGPN.org. Feel free to be a member of both…Continue

Tags: neuralgia, glossopharyngeal, gpn, livingwithgpn.org

Started by Ben Munoz. Last reply by elaine48 Jul 10, 2011.

GPN - No Voice, Chest Pressure 6 Replies

Hello Everyone,My GPN has been really active this winter, particularly in December and so far, in January. When I lose my voice completely and the pain is topping out over a 10 on a scale of 1 to…Continue

Started by Jackie M. Last reply by elaine48 Jul 2, 2011.

Glossopharyngeal Neuralgia 5 Replies

I am so excited to find this site. This is the loneliest thing I have ever had. If I am awake I am in pain. I have considered suicide because of this but my spirituality won't allow me. I feel like a…Continue

Started by Monica Sanders. Last reply by Monica Sanders Feb 8, 2010.

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Comment by Scott Orn on December 30, 2010 at 12:00pm: so glad you found the group Sally!

Comment by Sally A. White on December 30, 2010 at 10:45am: I am so overwhelmed that I have found this group!!!! I am currently taking 1200 mg. neurontin 3xday to control my GN. Thsi is the first day in about three weeks that I haven't been shocked while talking, swallowing or even moving my head a certain way. Not liking the "foggyness" the medicine causes, but it's better than the shocks. Dr. said he might add other meds like cymbalta, if this doesn't work, but I am not in favor of all these chemicals going into my body. Has anyone out there tried other treatments? I'd love your imput!

Comment by Ben Munoz on December 24, 2010 at 12:10pm: BensFriends.org (led by Grace McKay) created a new patient community specifically for GPN. http://www.LivingWithGPN.org. Feel free to be a member of both communities.

Comment by Grace Mackay on May 3, 2010 at 8:22am: Hi Lilys Mommy, I am so sorry to hear that your daughter suffers with this, If she has visible compressions then MVD is the way to go, however I would suggest a neck CT, if she is having pain in the throat as well as in her face the pain could be caused by a bone compression in her neck due to eagle syndrome, when the nerves are compressed before they get into the skull, if that is the case there are other options. It's just a suggestion but if she is having pain in both regions I would double check it. I hope that helps a little, but all the best for you both, and I hope things settle down for you soon. x x x

Comment by Lily's Mommy on May 2, 2010 at 11:25pm: My daughter has let it be known that the back of her throat hurts even prior to her MVD. I didn't think anything of it until I read this discussion. They are sporatic yet intense. She has bilateral TN. Has had a MVD on her right side and is having her left side done in July. What should I do from here??? She is only 3 years old.

Comment by Diana Parker on March 26, 2010 at 8:34pm: I am feeling like I have swollen glands but not the same way as the flu.

Comment by Diana Parker on October 14, 2009 at 10:06pm: Not used to sleeping!

Comment by Diana Parker on October 6, 2009 at 10:01am: ok, Hope to see you, I'll look at your site again. I got to get ready to go out too. But you should hear the cracks that come from me!

Comment by Diana Parker on October 6, 2009 at 9:36am: Heya Doc M, I am doing the upper cervical chiropractor with the massage now for the ON and it helps a bit. But I am afraid of getting cracked as it kinda hurts! They have to hold my hands and I feel very sleepy after, is this normal? Can I talk to you later about it?

Comment by Diana Parker on September 30, 2009 at 5:55pm: You know it would be nice for the neuro or any other Dr. could say, "you should make an appointment with an ENT" in cases like that. I know they do realize that other thing my trigger, TN/GN or any other __N we may have. I wish they could try to treat us as a whole and not bits and pieces.