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Comment by Richard A. "Red" Lawhern on November 28, 2011 at 7:53pm

Pat, I've just gone through a marathon of writing for the face pain info pages and Coping with Crisis here on site.  But that peak in activity is now past.  I shudder at the potential magnitude of research implied in your suggestions, but I may be able to step up to at least some parts of the need.  I agree that it certainly is a need.

Regards, Red

Comment by Pat on November 28, 2011 at 6:25pm

Hi all,

I have two suggestions but don't know if they are possible.  The first is that there's little to no information for people who are left behind once the traditional treatments and options have left them worse off - i.e., anesthesia dolorosa, deafferentation and other forms of neuropathic pain that is irreversible.  What's the latest information available for our situation(s)?

My second suggestion is around this forum posting the latest research studies/developments that pertain to TN so we can stay current.  Thanks for the invite; your good work is appreciated.

Pat

Comment by Jackie on November 28, 2011 at 1:34pm

Tracy, you are too kind!

Comment by Tracy C from BC on November 28, 2011 at 1:30pm

Actually Jackie, yours was way better ..... I'll copy and paste yours when needed  lol :)

 Thank you

Comment by Jackie on November 28, 2011 at 1:12pm

Red, I am sure Tracy will agree as she has tried to inform Phoebe. All people logged on to LwTN who have not clicked on the green dot next to the man figure, at the page bottom right and turned it red will be shown as being on site, even if they are not looking at the chat page. If you do not want anyone to know you are on site click the green dot and make it red, you will not be able to open the chat page however. So to break it down

1.All members on site with a green dot show up in the chat room right side list

2.If you do not want anyone to know you are on site click the dot to make it red.

3.Just because members are logged in it does NOT mean they will be looking at the chat room

4. If you are desperate to gain attention please post a status on the front page asking for someone to join you in the Chat Room

5. If you hear a pinging noise when on site it is the sound of a comment dropping into the chat room

Hope this helps and sorry your answer vanished Tracy, I am pretty sure it would have been easier to understand than mine!

Comment by Tracy C from BC on November 28, 2011 at 1:06pm

This isnt the first time my comments have been removed . .. i just let it slide but it happening to much.   It looks like members are having conversations with  themselves.  I have always been appropriate and am proud of it.   I want to be able to help.  Maybe we need to tighten admin again ....

Comment by Jackie on November 28, 2011 at 1:04pm

I would like to know the answer to that too. Also why Red keeps falling off my friends list when I forward messages to him. Sometimes Tracy I am just plain baffled!

Comment by Tracy C from BC on November 28, 2011 at 1:01pm

 ..... This has been a known problem for sometime.  Jackie and Gloria can confirm this :) 

Comment by Tracy C from BC on November 28, 2011 at 12:59pm

Just curious ...... why was my reply to Pheobe removed regarding users showing in chat room if they are on the site on any page?  I am a site administrator.  ?? Thank you

Comment by Richard A. "Red" Lawhern on November 28, 2011 at 8:55am

I'd been under the impression that the chat room shows the presence of people who have that page open -- not the total number of folks logged into the site as a whole.  For instance, when I open the chat page I usually find that my name doesn't appear in the user list until a few seconds after the page "wakes up" and registers my presence.  A lot of people seem to drift away from their terminals, or may have other site pages open in other windows.  We can ask the site Admin, if you'd like, Phoebe. 

Regards, Red

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