EYE PAIN AND EYE PROBLEMS

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Comment by Tree69 on February 14, 2013 at 11:36am

MVD post op 2/14/13

MRI showing obstruction, but the image is not advanced enough to give us an indication of how much vein is touching my Trigeminal Nerve. Worst pain is Left side of head and face. Object of MVD is to relief Atypical and Classic Trigeminal Neuralgia. Hoping to improve other complication’s such as left eye pain and motor function loss (eye drag) to determine if TN is or was causing headaches and scalp pain. All noted present prior to surgery time.

Surgery 9am Thursday morning. Out of ICU and into recovery by about 3pm. My surgeon found two blood vessels rubbing on my TN in two spots. One vein had done more damage than the other. He shredded Teflon to make a thick padded layer of cushion around the TN so that the veins cannot touch any more. He said the surrounding nerves seemed to be unaffected by any compression, not for sure but indicating my face pain could be stimulated by the TN compression.

Friday-No numbness on face, face pain improved by an instant 85%. Swelling around incision is the most painful, and my glasses bother the site very much. Right sided TN tingles and pains started up this afternoon. Strong night time Left sided tongue tingles resulting in my normal top of scalp pain lasting through the day. Ear full of blood and fluid feels like when one has infection popping and hissing. But draining. Aches a lot. Hearing supersensitive and headache very high. Escaped hospital Friday night because the nurses were not controlling my pain meds, giving my other pain meds or letting me sleep. Which is so cruel and I cannot tolerate while having a hole in my head.  So I did all I had to do to get released early. Out Friday night-One day !!!

Recovered so much faster with sleep. Better each day.

Tuesday-Took off band aid yesterday to see my Frankenstein head. Numbness close to incision site strong with strong pain quality also.

Off of Percocet Monday, maintaining pain level on normal meds, Tramadol and Ice. Gallixa helps with the swelling and pain along with my Ketamine cream. With bilateral TN, my others side has been in agony making it most difficult to get comfy. I think they smashed and my ear and head screwed to a board. I have screw holes to fit. So my other ear has a bed sore thing. Ouch! Gallixa, Ketamine, Ice to the rescue.

One week after I notice healing every day. My strength returning, surgery pain lessening slowly.  Finally something is working folks; my surgeon was very pleased with the instant results, because of my complex atypical face pain. He was truly unsure how far we would get with pain control. I asked for 50% and I got it. I woke up almost with no face pain. My eye still hurts with a considerable drag, it was dry until yesterday. It tears up like it used too today.

Time will tell, but we are already very impressed with the results. Not pain free yet but I have more hope than before.

Wishing you all relief,

Tree

Comment by jacksharky on February 1, 2013 at 12:23pm

Hi Guys,I'm still strugling to believe I have TN.But I do get a lot of eye pain.My jaw seems to have settled.(apart from in the very cold).I get a kinda pressured feeling sometimes as if someone is pushing my eyes inward .But the pain is on top or behind the eye.I get sinus pain a lot.X-rays are clear so no infection.I also get sudden head pains.Caused by turning my head.An aching behind my right ear/to the right of my head.I've had a couple of migrains resently,not something I am used to!! Stilll get flashes of pain,not sharp but definatly uncomfortable.I get some pain in the eyelid also and some twitching in upper and lower lids.I'm only taking nortryptline as it seems to help.I can not wear my glasses as much as I need as they seem to cause a deep burning in the centre of my face I imagine it to be like a sinus infection.  Anyone expearance anything similar???

Comment by Christine P. on January 27, 2013 at 10:52pm

Sufferingjen, after weeks of the symptoms I finally went to my eye doc. He said my cornea has scratches and abrasions on it; probably because I can't feel it. I am on anti-biotic drops and may need surgery to address issue, as cornea is supposed to be smooth. I would suggest you see an optometrist to make sure your eyes are ok.
Let me know ,
C

Comment by SufferingJen on January 27, 2013 at 8:28pm

very time i wake up from a nights sleep, or nap i wake up with the reddest eyes, and everything is so blurry and can take hours to go away. Doctors dont know whats causing this. Anyone else have this happen and not be medicine related?

Comment by Nomad on January 22, 2013 at 6:49am

I am finding this discussion fascinating. I too have recent difficult problems with my right eye where the ATN is. I was told dry eye and blepheritis by one doc and some sort of neuritis by another. It pulls and burns. I use the gel at night and lubricating drops all day long. I also have an rx drop that is non steroidal that the Dr said is almost like Tylenol for the eye to take now and then, which helps a little. I bought Ocusoft Lid Scrub wipes and I wipe my eye lid each morning and see no more signs of blepheritis But my eye still bothers me, some days a lot. I think with all I have been doing, there has been slight improvement, which is better than nothing .

Comment by Jackie Ferreira on January 22, 2013 at 6:33am

thank you so much for that info Lori!  i feel better already. to add good news, on sunday night, something changed in my vision. i can focus better on things directly in front of me, something i couldnt do last week!

Richard, i got the shock feeling on my scull, i am thinking that its the healing process, maybe the same for you!  hope it gets better!

Comment by Lori (Lefty) on January 21, 2013 at 11:09pm

Jackie Ferreira, I had double vision for 12 weeks following my MVD, but it DID go away after that time period...my NS said the say thing, that he'd never had a patient experience it either until me! ;)  I was getting pretty nervous about it but he kept reassuring me that it WOULD eventually go away & it did...so hang in there!!! Best wishes on your recovery! ♥

Moderator Comment by Richard A. "Red" Lawhern on January 21, 2013 at 12:28pm

Valerie posted the following message.

Hi. I just joined this group searching for others with similar problem to see if there are any suggestions for relief. I get short, sharp (very sharp) pains in my eyes (either or, the pain doesn't seem to have a preference). Additionally, the cheek bone just below the center of my eye gets random electric shocks. Anyone else???

Comment by Jackie Ferreira on January 15, 2013 at 1:58pm

Hi All. I am new to this discussion. It's been fantastic to know that I am not alone. I had my first MVD almost 8 weeks ago. I woke up with double vision and it hasn't improved to date. My NS says he has not had another patient this problem. Has anyone else experienced this and if so how long did it last? All the best with everyone's recovery and feeling better! Thank you Jackie

Comment by buntbean on January 5, 2013 at 6:04am

I use preservative free thera tears every 15 min (have done so for almost 8 years). I have to lay down every afternoon to give my eyes a chance to rest and heal (best doctors in Boston MA feel the TN caused my tear glands to stop functioning, new pain receptors formed and now I have nerve pain that focuses along my lower lash line. Eyes are super sensitive to everything). When I lay down and at bedtime I use Refresh Celluvisc. I am also on Restasis. I also get clogged meibomian glands. When that happens the burning doesn't stop. Warm compresses 3X/day helps. You'd have to see an eye doctor to know if that's part of your problem (I have Rosacea with Ocular Rosacea as well).
To Sue Richey- I've followed some of your posts in the past and I feel your pain. In regards to the eyes your pain is the most similar to mine. I'm so sorry any of us are suffering like this. God bless!

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