Bilateral TN

Comment

Comment by Alana Cowell on August 20, 2010 at 12:13pm

Thanks :) xx

Comment by Kirsti Leeder on August 20, 2010 at 11:43am

Oh Alana Ido feel for you, my BiTN in affected by cold, but rarely same sides at same time xxxxx I hope it eases soon xxxx

Comment by Alana Cowell on August 20, 2010 at 11:22am

Im only 17 and have bilateral TN in the ophthalmic and maxillary branch. Unusually, when the pain attacks occur it can sometimes be in both sides at the same time. I cant wait until summer is over because for me the pain is triggered by mainly heat, I wish I knew what was causing this!!

Comment by Liz K. on July 29, 2010 at 11:10pm

I am glad Lily is doing well. I know you are so happy and thankful that God has allowed your child's TN pain to improve. I hope she continues to do well.
Liz

Comment by Lily's Mommy on July 29, 2010 at 9:24pm

Lily had her left MVD on July 14th. We were amazed at the difference between last surgery and this surgery. The attacks are noticeably diminishing. We have already been able to take away 1 of her 4 pills. Lily takes meds 3 times a day. In about 2-3 more weeks, the mid day pill will be eliminated. We are so excited to know our daughter without meds. Wow! That is all I know to say right now. Thank God for "Gifted Hands". :)

Comment by Anne Macaloney Chapman on July 24, 2010 at 1:04pm

We'll give him Idio pathic Migraine!!! is it soooo awful to diagnose something the damn drs know nothing about ...just ADMIT IT ALREADY!! and lets get on with learning about it so we can stop it... Sorry to hear you are having a hard go of it kirsti ((HUGS))

Comment by Kirsti Leeder on July 24, 2010 at 3:01am

My neurosurgeon has diagnosed Bilateral TN, I saw a neurologist a few weeks ago and he is doubtful! he thinks it is Idiopathic Migraine!!!! has anyone else had experience of this

Comment by Kirsti Leeder on June 10, 2010 at 12:29pm

hi all, been to see neurologist this afternoon, he is changing my meds again! not sure how to feel about this................

Comment by DARREN WATTLEWORTH on May 18, 2010 at 3:19pm

Hi everyone having bad day today, the tn pain is on the right side today i also feel a little sick picked up a cough so when i cough the pain is increased so i hold the side of my head to try an comfort the pain what a nightmare i hope everyone is not having a day like mine

Comment by Cynthia Cross on May 12, 2010 at 8:23am

Lily's mommy, what an inspiration little Lily is for all of us. I don't know if you can call my TN bilateral or not, but I can't imagine what every day must be like for your precious Lily. I had MVD, on the left side, on 11/5/08. Now I have TN on the right side. It is so frustrating. I was pain free after my first MVD and got my life back. Now I'm starting the whole process over again. I had my surgery done in Seattle, by Dr. Larry Mayberg, at the Seattle Neuroscience Institute, at Swedish Hospital, Cherry Hill. I wish Lily and your family the best of luck and a speedy recovery for her. Be sure to let us all know how things turn out and how she is doing. Take care.

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