Bilateral TN

Comment

Comment by Maeve on March 6, 2010 at 9:18pm

Hi Victoria,
Some people have bad reactions to Tegretol - sorry to hear you are one of them. There are several other medications out there that I'm sure your neurologist will have you try. Again, many of these have to build up in your blood stream and you will just have to be patient for some relief.... it will happen... we all have to go through it. I had problems with Neurotin, which was the first drug that was tried with me.

Stay strong,
Maeve

Comment by Victoria on March 3, 2010 at 10:11pm

I spent the afternoon in the emergency room connected to a morphine drip and some some powerful muscle relaxants...I just started taking Tegretol and when I got to 200mgs in am and pm, I had various reactions including a MIGRAINE...go figure that Teg would give me a migraine on top of my TN pain...I thought my head was going to burst with the various different pains. I have now stopped Tegretol...thank god and will be on morphine tfor a few days...will see my neuro on Wednesday...I couldn't believe this...

Comment by Kerry on March 2, 2010 at 6:50pm

Thanks everyone again! Day 2, still no TN pain!! Wow, 2 pain free days from TN, that's been wonderful!

Interesting though - the pain i'm feeling now post op - transposes onto my left side of my face. Must let dr know this. I'm getting 'spasms' of this pain from the procedure on both sides at different times... Instead of TN pain... It's really, really - weird!!

Comment by Maeve on March 2, 2010 at 1:20pm

Yipee Kerry! I am so happy for you! I hope that the results last a long long time!

Comment by Ro ~ on March 1, 2010 at 10:48pm

hiya kerry i'm very happy you have some relief from all the zaps and all! ~ :) rest woman! lol be well. you're always on the go aren't you?

.. hey victoria, it's great you found the answer you were looking for right here :) works well!

Comment by Victoria on March 1, 2010 at 9:17pm

Thank you Kerry for sharing this with us, I wish you quick recovery and pain freeness! It also gives me some information that I was looking for. I always wondered how the bilateral TN was dealt with..Thanks again.

Comment by Kerry on March 1, 2010 at 8:55pm

PS: Oh also, the left side - it's just sitting dormant - it is not 'waking' up to the lack of tn stimulation on my right side - which is often what does happen, one side would stop attacking me, the other would start up.

Brogan, your Neurosurgeon may well be correct - so far so good - but I will get the left side done also in a few weeks time! Just to be sure! YAY! I'm getting silly, must be nap time again!

Comment by Kerry on March 1, 2010 at 8:52pm

Hi all ~ Still groggy from anesthesia :-) even today. I'm home by myself and got out 2 mugs to make coffee :-) lmao.

Ok, so day 1 - still pain free. Now feeling the internal bruising and swelling from yesterday so trying not to move my mouth too much - but NO zaps, NO stabs! Oh such a wonderful thing - even if it is / turns out to be temporary, today I'm very happy! Thanks again for all everyones support! It meant a lot while I was sitting waiting for this to happen yesterday. The procedure got delayed by 3.5 hours, and I was in a nasty TN attack the entire day, including the night before - I'd been awake all night, fasting after 7 am and didn't get in for my procedure till 3 pm, I was light-headed, in pain and got my turn - Dr says must warn you if we go ahead, numbness IS a possibility! Me, sitting there in an attack at the time, I just said - "Lets go for it!" Numbness, who cares? The pain will be gone! And it was - and NO numbness either! YAHOO!

BTW ~ I slept ALL night, woke at 7 am, thought WOW, that was great! Hmm, 7 am - chill rainy day - happy - climbed back into bed and slept a further 4 hours till my phone rang - blasted phone... :-) Ok, that's it from me - I'm still a little out of it :-) bye for now peeps!

Cheers all :-) best wishes to all of us for a pain free day!

Kerry X x

Comment by Ro ~ on March 1, 2010 at 12:59pm

AWESOME news! Now I hope this will let you get the sleep you need too :)) thanks for keeping us posted Kerry ~

Comment by Kerry on March 1, 2010 at 7:09am

Thanks everyone!

So far what I know is this - I am pain free (so far)! Considering I went into the procedure in the middle of an attack and came out in no pain - thats a huge relief! Dr says pain may return and get worse before it gets better over the next few days, but I also have NO numbness - also a huge relief. He also says not all the branches may be affected by the procedure so to monitor if pain returns in certain areas in which case we'll go back in and fix those areas up also in a follow up procedure. He's going to book me in for 3 weeks time - either as a patch up on this procedure or to then do the other side. Today, I chose the right side. So next up - the Left!

There's more to my story of course - but from all previous pain and a consistent lack of sleep cause of the pain - and likely plus the load off my shoulders from relief that I'm ok post procedurally :) I'm now exhausted. So I'll write more at a later time and shall now try to get the sleep long eluded me!

Best wishes to all for a pain free day!

Kerry xx

• ‹ Previous
• 1
• 2
• 3
• Next ›
• Page