AUSTRALIA AND NEW ZEALAND MEMBERS

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Comment by evie on May 11, 2013 at 8:27pm

Whoops I meant to say Jenny not kennedy

Comment by evie on May 11, 2013 at 8:27pm

Kennedy try rinar nasal spray it is new OTC pharmacy may think you are asking for Rhinocort get them to look it up get in for you it has an oily base and contains capacin it works for me with 15 mins and lasts for 4 hours at least

Comment by Smiley on May 11, 2013 at 9:07am

Hi Jenny, I'm in the same boat, cold and windy aren't good.  Does anyone have any useful tips for dressing to go outside? 

Comment by Jenny on May 9, 2013 at 1:44pm

Hi Everyone I have had sinues really bad , so have been not well.The pain has been shocking Dr has been trying different meds, now on 300mg Lyrica twice a day. I find windy cold days are bad.

Many Thanks Jenny

Comment by Tubby on May 7, 2013 at 7:49pm

Hi,Just wanted to say helo to all the Aussies on here(oh andthe wonderful New Zealanders).I am from country Victoria (Gippsland) and am newly diagnosed. Im in process of having MRI and trialling Tergretol. Very scared and feel lost.

Comment by Craig on April 25, 2013 at 7:55pm

Had my flu shot last week. ( I have continual ATN ) - a year or so back I had the flu ( influenza not the cold) : 2 weeks of hell, not knowing if I was coming or going, hard to tell what was worse, the flu or the ramped up ATN. I dread the thought of even the common cold - any physical 'illness' is so much worse when it mixes with the ATN.

Comment by kaylee on April 24, 2013 at 5:33am

Hi Aussies and Kiwis , just a reminder to get your fluvax ASAP. I had mine a while age but have developed a head cold today . All sinus congestion and headache , only a simple cold but making my tn pain much worse . Flu would be unbearable . You still have time as peak flu season hasn't yet hit here.

Comment by kaylee on March 15, 2013 at 5:54am

Lyn, I'm so sorry things haven't gone well for you , when you hadn't posted I had hoped you were well and on with life . I hope the surgeon has an answer, perhaps movement of the teflon pad ? I'm hoping for the best for you.

Comment by Lyn on March 3, 2013 at 10:14pm

I keep writing on this & then it drops out ! I have been trying to say that full blown (R) sided pain has returned after something "pinged " behind (R) ear where I had MVD , CSF leak & meningitis last july / Aug.Was off all meds ( Lyrica , Endep etc )but went to DR & now back on all including Oxycontin & Endone, Am due for review with nuerosurgeon next wk. wonder what he wiil say ?I have also been having (L) sided pain with occasional "electric shocks " some  more severe than others & pressure in forehead & front of face, was hoping to get back to work as RN  ,but not lokking good being on so many drugs! Has anyone else had failed MVDs & if so what was the outcome ? CHeers I"ll go back to seek solice in the garden now lol

Comment by evie on February 11, 2013 at 4:25pm

I am staying in the yarra valley if you are in this area i have found a couple of good GP s also try the T NA irene wood she has lists of recommended doctors

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