We are patients living with Trigeminal Neuralgia, here for your support.
A place to meet new friends and discuss medical issues related to Trigeminal Neuralgia, specific to Australia and New Zealand and activities members are interested in.
Latest Activity: on Wednesday
Started by Jenny. Last reply by Jenny May 9.
Hi Everyone, I'm Jenny and like everyone I had 2 teeth taken out that didn't need to came out. I first got a terrible earache,burning all down my face and jaw and aching teeth.My Dr put me on…Continue
Started by Jenny. Last reply by Petal Apr 28.
Started by Jenny Apr 27.
Hi Jenny, I'm in the same boat, cold and windy aren't good. Does anyone have any useful tips for dressing to go outside?
Hi Everyone I have had sinues really bad , so have been not well.The pain has been shocking Dr has been trying different meds, now on 300mg Lyrica twice a day. I find windy cold days are bad.
Many Thanks Jenny
Hi,Just wanted to say helo to all the Aussies on here(oh andthe wonderful New Zealanders).I am from country Victoria (Gippsland) and am newly diagnosed. Im in process of having MRI and trialling Tergretol. Very scared and feel lost.
Had my flu shot last week. ( I have continual ATN ) - a year or so back I had the flu ( influenza not the cold) : 2 weeks of hell, not knowing if I was coming or going, hard to tell what was worse, the flu or the ramped up ATN. I dread the thought of even the common cold - any physical 'illness' is so much worse when it mixes with the ATN.
I keep writing on this & then it drops out ! I have been trying to say that full blown (R) sided pain has returned after something "pinged " behind (R) ear where I had MVD , CSF leak & meningitis last july / Aug.Was off all meds ( Lyrica , Endep etc )but went to DR & now back on all including Oxycontin & Endone, Am due for review with nuerosurgeon next wk. wonder what he wiil say ?I have also been having (L) sided pain with occasional "electric shocks " some more severe than others & pressure in forehead & front of face, was hoping to get back to work as RN ,but not lokking good being on so many drugs! Has anyone else had failed MVDs & if so what was the outcome ? CHeers I"ll go back to seek solice in the garden now lol
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