Geniculate_Neuralgia

Comment

Comment by Lisa Giardino on November 5, 2009 at 6:37pm

Hi everyone , I haVE SIMIALR SYMPTHOMS, i HAVENT BEEN BEEN TO THE DOC YET BUT CANT LAID DOWN LONG ON MY LEFT SIDE,,,OF MY HEAD AND EAR STARTS UP BURNING UP Like fire,,,,, Lisa

Comment by Diana Parker on November 2, 2009 at 12:14pm

It went away( the left ear pain) after I got up and moved around, but I was scared at the time. Not thinking about it, at least for now. I'll only think about it if it turns into the pain of the right one(GN). That pain has traumatized me, I am afraid to get those attacks and I avoid things that might start it. I freak out with the pings and zaps of the right one, that is a warning it may come, if I get pings and zaps with a burning sensation, I know it's coming for me. Rather give birth to 2 10lb twins and causes anxiety. Not thinking about the left one! I am ok for now! Thanks Ro

Comment by Ro ~ on November 2, 2009 at 11:40am

if you can diana, try to go with the flow and not focus on "if's" ok? :) that helps sometimes when you just don't think so much about things ~

Comment by Diana Parker on November 2, 2009 at 10:57am

I slept on my left ear a few times and it is starting to feel like when the right ear started, scary for me. I don't think I can handle 2 sides with that pain. If it does happen, I hope they take turns!

Comment by Jo on September 12, 2009 at 5:57am

Hi Sarah,
I think the NHS (especially all those delightful secretaries etc ) are just robots who are full of these pre-programmed speeches. They have a good job mind. They normally answer the phone 1 out of every 100 calls and in some cases don't even bother answering. I remember when I was trying and trying to get my scan results and eventually we dedicated one phone to the cause and kept it on auto-redial. After 6 hours no luck!!
They don't worry too much about paperwork either.

I hope you get seen soon.

Comment by sarah edwards on September 10, 2009 at 5:19pm

Hiya gang, update, I rang Frenchay to see where I am on the waiting list to see the pain clinic, I was told 29th out of 30! well, no rush then!!! When I asked how long it would take for me to be seen the rather 'ahem' helpful (NOT) woman said 'Governement targets state you should be seen within 5 to 7 weeks' Was she reading from a script? oh I bet she was, full of humanity or full of (s**t)
Now I dont mean to winge but "I am in Pain, would love not to be so get me sorted" ha ha.

Comment by Jo on September 10, 2009 at 4:18pm

Hi Liz,
Welcome to this group. Its great to see you here.

Love and hugs,

Jo X x

Comment by liz on September 10, 2009 at 4:53am

hi all,
just found this forum,i have the deep ear pain in both ears and have had it now for 5yrs,ive been dx with aytipical facial pain and its horrendous,it also goes down in to my neck too ,i cant move my head or talk properly,i cant chew,i cant hold a phone to my ear,i cant stand noise or to be touched,i suffer from tinnitus and i always feel sick and dizzy,ive been on so many different meds that havent worked,im currently on 1600mg tegretol retard and 100mg nortriptiline and they have now given me some capsacin cream but like i told the neuro i cant exactly put the cream deep in my ear can i ? lol,its just the most excruiating pain ever and i have it constantly,ive been suicdal for about a yr now cos of it ,i suffer with fibro,depression anxiety and panic attacks all made worse by this,thankyou for listening

Comment by Jo on September 9, 2009 at 11:10am

Hi Diana,

I've only had the ear pain the past month. But its growing steadily worse and today has been particularly bad. :0(

Comment by Kerry on September 9, 2009 at 10:12am

lol

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