We are patients living with Trigeminal Neuralgia, here for your support.

Trigeminal Neuralgia Video - Please Rate & Embed on your Blog

I wanted to post a note on the Trigeminal Neuralgia video we made about Living With TN. First, we really appreciate folks who have viewed it and rated it. It's up to about 180 views now which is really great. It would be very helpful if you could view it, rate it and embed it on your personal blog. The quick reason is below. Thanks.

Rating and Embedding is important because it makes www.livingWithTN.com easier to find. A very common concern from new members we get is, "Why aren't you easier to find?" I've received some heartbreaking messages from people who have been diagnosed for weeks to months, who haven't been able to find the site. Everyone on the site has felt helpless when receiving that news so we want the site to be as easy to find as possible.

When diagnosed, most people Search Google for help. We're currently somewhere between the 2nd and 7th page on Google results. Eventually, people make it to the site, but anything we can do to push up our rank is very helpful. Google counts links when evaluating a pages worthiness. Therefore, telling friends to link to the site and putting a badge on your personal site or blog really helps LivingWithTN. It's pretty amazing how a few badges or links can push us up in Google.

YouTube is the 2nd most searched site on the Internet now. When you search YouTube for "Trigeminal Neuralgia," this video now comes up around 20 - 30, and it's on the first page. This is amazing progress in one week!

The video is that high up on YouTube Search because it has a lot of views already and people are rating it very highly. You can imagine someone who was recently diagnosed going to YouTube and looking for information and now the site is going to be even easier to find!

If you can take a few moments to view, rate and embed it (along with a Badge on your site), you will continue helping the community, and most importantly, help people who have just been diagnosed.

Thanks.

Tags: neuralgia, support, trigeminal

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Permalink Reply by Scott Orn on August 17, 2009 at 12:28am

Incidentally, Badges can be found on the bottom right of pages. There is a "Get Badge" link that you click and follow instructions. If you have trouble with this, post a comment here and we'll walk you through it.

Cheers,

Scott

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Permalink Reply by Diana Parker on August 17, 2009 at 11:03am

This is the video that led me to you site. You have talent.

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Permalink Reply by Scott Orn on August 17, 2009 at 11:16am

made my day Diana. Thanks!

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Permalink Reply by Ben Munoz on August 17, 2009 at 8:30pm

Thanks for the background info on this. The site will definitely become easier to find with as more people view the video on YouTube.

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Permalink Reply by Lonna Maylone on August 22, 2009 at 12:48am

Awesome video leading people with TN to a great support site.

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Permalink Reply by Scott Orn on August 22, 2009 at 11:51am

thanks Lonna!

Lonna Maylone said:

Awesome video leading people with TN to a great support site.

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Permalink Reply by Scott Orn on August 22, 2009 at 4:13pm

thanks Ro!

Ro~ said:

Did I mention I added it to the News Letter too? I hope it helps ~

(i like the new feature to send a msg to a person in a forum or blog. nice!)

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Permalink Reply by Ben Munoz on August 22, 2009 at 4:49pm

Thanks, Ro!

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Permalink Reply by Saja on August 22, 2009 at 5:43pm

This is ONE disease you DO NOT want to have!
The Medical Profession calls it "The Worlds Worst Pain". And if you know of someone that has it, ask them!
This video is a short but so Important Video to get out to people around the World.
There are hundreds of thousands of people Trigeminal Neuralgia has "hit". And when it does, it can cripple your life and your body. The pain is like none other, I know, I have it! It hits people in the face! Very bad facial pain!!
Please look Trigeminal Neuralgia up and read about it. Many people wonder what this pain is?? What and where did it come from?? No one really knows. Some think dental work, others really don,t know.
But there is no real "cure" for this pain. It is often somewhat treated by high doseAnti-Seizure drugs.
For many- that does not work, or help little.
For your sake- please get this word out!!! Many people suffer terribly from this, and some have taken their own lives because of the never ending pain.
Please - please- help the many thousands out there with this disease.

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Permalink Reply by Scott Orn on August 22, 2009 at 8:49pm

Thanks Saja!

Saja said:

This is ONE disease you DO NOT want to have!
The Medical Profession calls it "The Worlds Worst Pain". And if you know of someone that has it, ask them!
This video is a short but so Important Video to get out to people around the World.
There are hundreds of thousands of people Trigeminal Neuralgia has "hit". And when it does, it can cripple your life and your body. The pain is like none other, I know, I have it! It hits people in the face! Very bad facial pain!!
Please look Trigeminal Neuralgia up and read about it. Many people wonder what this pain is?? What and where did it come from?? No one really knows. Some think dental work, others really don,t know.
But there is no real "cure" for this pain. It is often somewhat treated by high doseAnti-Seizure drugs.
For many- that does not work, or help little.
For your sake- please get this word out!!! Many people suffer terribly from this, and some have taken their own lives because of the never ending pain.
Please - please- help the many thousands out there with this disease.