TN Triggers

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Permalink Reply by Brogan Woll on August 1, 2011 at 4:50pm

I can empathize with your triggers. I have been trying to loose all the weight that I have put on since survey and all the meds but every time I get my heart rate up I am guaranteed to vet saps and a full blown TN attck that will last for at least a day. I don't know what to do. 

Rennee DeTullio said:

Thanks for your response, Jo! I have a lot of triggers like talking, chewing, smiling, laughing, yelling, wind, whistling, weather changes, etc. Oh, and STRESS! Exercise is difficult because any time my heart gets pumping really good, I get the pains. It just seemed like most of what I find out there are the basics. But, I know I get some odd triggers and thought I would see if there are others like me. Thanks again for responding! I wish you a pain free day tomorrow!

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Permalink Reply by Brogan Woll on August 1, 2011 at 4:54pm

I get the altitude triggers too. When we go skiing we have to drive from see level up to the mountain and it is almost always the same spot onthe road that I get pain. I now dread it. 

Suzanne Marriott said:

I can really relate to Pat's description of the "nail in the tooth" sensation. The pain feels like somebody's jabbing a raggedy nail up through an upper molar, then twisting it... and sometimes, just for fun, hooking the nail up to a car battery OWWWW! I have the usual triggers everyone has mentioned; putting on make-up, cold wind, sharp noises, etc. I also have trouble wearing sunglasses (or any glasses) if the nosepiece touches the inside right of my nose. Changes in altitude are a problem. I don't get on a plane often, but I live on the side of a mountain. The nearest town is in the valley below which is a 2000 feet descent. Going down the mountain isn't a problem, but coming back up often triggers the pain (weird!). I think it has to do with air pressure... it gets lower as I go up. Also, low pressure weather systems trigger multiple attacks and make life miserable. Luckily, I live in Southern California where the weather is nice most of the time. I also get nasty migraines that can last up to 3 days. I've noticed many of us also suffer from migraine, doesn't it seem to be related somehow? My migraines were few and far between before I acquired this affliction, and never as bad as they get now. They are also triggered by bad weather, and stress. As the mother of a teenage son who is in full rebellion mode, I have stress a-plenty!
Suzanne M.

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Permalink Reply by Brogan Woll on August 1, 2011 at 5:00pm

I always push my tongue into the painful tooth. It seems to help but maybe it is like holding our stomach when it hurts. It only makes us feel better but really does noting 

Jackie said:

When I am in crisis anything connected with the face working triggers. Even breathing just a little harder will give me a spasm. I don't like to think. About eating , drinking, and talking. All become impossible. Washing and make up are painful. Bending down can trigger.

Last crisis I discovered that curling my Tongue into the spasm ended it quicker, also trying to push my teeth near the pain presention and moving the teeth just a little bought the spasm to an end a little quicker.

Weird or what???

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Permalink Reply by Don Vandenack on August 1, 2011 at 5:18pm

Hi There, I am type one TN. My triggers are almost any thing to do with the face. I was just taking a shower, and the water hitting my face almost did me in. When I was done with that brushing my teeth was a real chore. Sometimes even brushing my hair hurts. Then there are somedays I can do almost anything witout a problem. We are having a lot of hot and humid days here in Wisconsin, I think that is playing a roll in how the pain is having and affect on me this week. It seems any noise sets of the pain, the TV, the dog barks almost any noise this week seems to be bad.

 

Thanks for being there,

 

Don

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