We are patients living with Trigeminal Neuralgia, here for your support.

So Many Problems

Hi Everyone,

I haven't posted in awhile. Had MVD (unsuccessful) about 1 1/2 years ago. The ATN pain has never healed completely but I haven't had to take meds like tegretol, thank God. I still have the dyslexia with my typing that started when I took tegretol. In the spring I was diagnosed with epstein bar virus/chronic fatigue. I have heard of this developing in some people after surgeries. Have any of you experienced this?

God Bless.

0 members like this

▶ Reply to This

Replies to This Discussion

Permalink Reply by Donna Mills on August 26, 2011 at 12:22pm

Hi Jamie,

I had MVD in April and like you have never been pain free although I am off all the medications now. I take something for my headaches, but nothing prescription strength. I am very tired all of the time and my GP says its from the surgery, I'm not so sure, I just feel like I should be stronger by now. I did start taking vitamins at my dr's advice.

Just thought I'd share.

Donna

▶ Reply

Permalink Reply by jamie leigh on August 26, 2011 at 1:46pm

Do you feel lots of anxiety? My was AWFUL for a long time after surgery.

Donna Mills said:

Hi Jamie,

I had MVD in April and like you have never been pain free although I am off all the medications now. I take something for my headaches, but nothing prescription strength. I am very tired all of the time and my GP says its from the surgery, I'm not so sure, I just feel like I should be stronger by now. I did start taking vitamins at my dr's advice.

Just thought I'd share.

Donna

▶ Reply

Permalink Reply by Donna Mills on August 26, 2011 at 1:53pm

I do have some anxiety, but that is norm for me, so I can't blame it on TN or the surgery. My family thinks I'm just to anxious to feel better and it's going to take some time, which could be true. I did read somewhere that within 6 months you will be as good as your going to be with the MVD surgery, not sure if that is true or not.

Take care