We are patients living with Trigeminal Neuralgia, here for your support.

Second MVD, Has It Helped You After The First Failed???

I know you are all wonderful at support and guidance. I have a very dear friend here in so much pain her life has become very difficult . She had an MVD which failed after 8 weeks

Have any of you had a second, and it has helped you?

Please write in and help my friend.

Jackie

Tags: Failed, MVD, Second

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Permalink Reply by Patty on February 13, 2012 at 7:38pm

I am on the fence about pursuing a second mvd. I read that the risks are more likely to happen, ie. Hearing loss, facial numbness, etc. I am more afraid for second time around than the first.

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Permalink Reply by Collette on February 20, 2012 at 11:18pm

Hi Jackie
I had a second MVD one year after the first. And unfortunately it was Unsucessfull.
I am due to have a Rhizotomy soon.
Saying that I have heard great success stories also.
I truly hope your friend finds relief soon.

Take care
Collette

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Permalink Reply by Yakub on February 21, 2012 at 1:40am

Hi Colette
Ask the surgeon if he is going to clipp all the three branches while performing rhizotomy or spare the 1st branch (opthalmic) because Mine was spared & there is no pain in it for 45 years. I was told by my neurosurgeon that the 1st division never gets pain when alone.
Yakub

Collette said:

Hi Jackie I had a second MVD one year after the first. And unfortunately it was Unsucessfull. I am due to have a Rhizotomy soon.
Saying that I have heard great success stories also.
I truly hope your friend finds relief soon.

Take care
Collette

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Permalink Reply by Jackie on February 21, 2012 at 4:26am

Again guys, thank you so much for all your replies. I am still wishing for better for all of you and of course my dear friend. I have told her about the discussion. You are all amazing, the best!

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Permalink Reply by MysticLodge03 on February 21, 2012 at 2:30pm

I have had 3 MVD's. None have helped. Has she tried Lyrica? Only thing that has helped me, and doesn't always do that. Good luck with your friend, she's in my prayers, and I feel her pain.

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Permalink Reply by Jackie on February 21, 2012 at 4:03pm

That is a dreadful shame to have endured three difficult surgeries with nothing to show for it. My friend has to take quite a cocktail with massive side effects. I think of her every hard day of her life. I hope you find lasting relief very soon.