We are patients living with Trigeminal Neuralgia, here for your support.

Crawling feeling on face

Hi, i''m new here and wondering as well as the terrible pain does anyone else have a crawling feeling sometimes? Like an insect crawling over your skin? Many thanks :)

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Permalink Reply by Richard A. "Red" Lawhern on February 9, 2012 at 7:22am

The sensation you describe is medically called "parasthesia". It is a common element of both types of TN as well as generalized trigeminal neuropathic pain caused by trauma or dental work.

Regards, Red

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Permalink Reply by Min on February 9, 2012 at 10:17am

I only get that in one spot on top of my head bout an inch back from my hair line off and on. Along with pain tho.Very annoying. :(

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Permalink Reply by Puppyhound on February 9, 2012 at 2:42pm

It is annoying, It makes me brush my face and that causes the pain to go mad. :(

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Permalink Reply by aCuppaCoffee on February 9, 2012 at 5:00pm

It happens to me daily. Often multiple times. Very annoying, and painful. I get an area in my hairline like Min C mentioned. I also get a place near my cheek bone. This makes me touch that spot, often subconsciously, triggering pain on my cheek and jaw.

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Permalink Reply by Puppyhound on February 9, 2012 at 5:09pm

Sad for us all but nice to know I'm not going mad, lol. I also get it a lot in my cheeks and sometimes in my lower jaw. I hate it as i am frightened of bugs and that's what it feels like to me. Crawling bugs under my skin or walking on my face. Yuck!! Thanks to all for replying to me, i did not know if it was a TN thing or not. :(

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Permalink Reply by Lisa (iamrite) on February 9, 2012 at 9:52pm

Yep, I get it... strangely right before I read this post I was experiencing it along my hairline. Fun times.

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Permalink Reply by LyndaS on February 10, 2012 at 1:21am

Yes, I used to get this in the inside and the outside of my right nostril and under the nose, above the lip on the right side. Thankfully, Botox injections (using the migraine plan of treatment) takes this and the annoying burning away for 5-6 weeks. I'm 5 weeks out from the last treatment and am having to tritate up slowly on the neurontin to cover the pain and creep crawler friends that come to visit. Sadly the meds taken at their max do NOT take care of the pain. So, in addition to extra meds, It's time to pull my elliptical walking schedule up another 15 minutes or so each day to compensate. Since I experience an anesthesia delorosa and trigeminal neuropathy on top of ATN type pain due to Gamma Knife radiation damage to the nerve, there is only so much a person can do. I will say that the creepy crawly happenings is really weird feeling and painful at times. What a goofy nerve we have! ha! Take Care, Puppyhound :-)