Craniosacral Theraphy

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Permalink Reply by Nickpotterygirl on January 20, 2012 at 2:00pm

I just wanted to check in & see how u were doing. I hope a  little better. It's alright I think we all have our moments of pity parties for ourselves. It's rough, hang in there! I know what u mean with all these tests and still nothing is gained. I wish u a nice weekend and I hope ur doing better! Nicky

kimik0206 said:

So upset!  MRI came bad normal...normal?  how can it be normal with what i feel in my head ?  I just want to cry.  My meds are making the pain less, but not getting rid of it.  Maybe I will just have this pain forever.  So my life will be tipsy because of the drugs and painful for the what the drugs doesn't touch.    I will try craino sacrial theraphy and I will not give up.  Today I'm just having a little pity party for myself.  I just want some one to see what the problem is and say OH we need to do this and you will be healed up.  I'm sure we all want that. Thank for reading my vent.  I'm sorry.

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Permalink Reply by kimik0206 on January 20, 2012 at 3:28pm

Well Friends.  I just had my first Cranio Sacral Theraphy.  I really enjoyed it and I am hopeful that it would help.  I am having a much better day thank you so much Nicky.  I will be spending my evening relaxing drinking lots of water and thinking positive.  Thank you for all your support.

 

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Permalink Reply by Scott on January 20, 2012 at 6:25pm

kimik0206

I am glad you had a good experience and are having a better day! They keep telling me to drink lots of water also, Which I don't like to do, so it must be a good thing. Thinking positive is good thing and helps in healing. Sometimes that is hard to do.

Scott

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Permalink Reply by kimik0206 on January 21, 2012 at 9:11am

Good day number 2 not a painless day,but a better day than I have been having.  Fingers crossed for more good days.  Going to Florida to see my Mom Wed. I really would love to have low/no pain when I'm there. 

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Permalink Reply by Scott on January 21, 2012 at 9:47am

Greetings kimik0206,

Thats great your having a better day! fingers and toes crossed for everyone to have better days ahead. Have a wonderful trip to your mom's.

Scott

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Permalink Reply by kimik0206 on February 9, 2012 at 7:40pm

Back from my mom's and back to my Craino Sacral Theraphy.  I was really hurting and my stupid self didn't even think about going back for more theraphy.  She got me in and worked on me for 2hrs.  It was amazing.  I am so blessed for her.  I am going back Monday.  I really believe she can help me.  I have to believe or I would go crazy.  I will keep you all posted.

Kim

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Permalink Reply by Scott on February 9, 2012 at 11:59pm

Hope your trip was a good one. Sorry to hear about the hurt but happy you had a good  therapy session. Keep the faith!

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Permalink Reply by kimik0206 on February 10, 2012 at 5:46am

I'm trying Scott. Thank you  It is so hard when I'm embarrassed to go out anywhere in fear of having "attacks"  I'm praying that my therapy sessions will work.  I don't want to just pump more drugs into my body.  I have a great job and I'm afrain if they put more drugs in me I won't be able to do it anymore.  Sorry for venting to you.  I hope you have a great day.

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Permalink Reply by Nir Morita on February 10, 2012 at 6:37am

GOD,  what is is that we have ?   i mean - i can not accept that.  
i suffer from conmstant pain + burning.... all the time...

i was a healthy guy . went to the dentist - it all strated. i DO feel that it is some kind of infection that is not seen on XRAYS.

all the meds... 

i'm not taking any meds ... and kimik0206  - i'm reading you take 3 different meds... i'm afraid taking only one (cymbalta , or tegretol)  -    tryed lyrica high doses this year -  and it made me feel not good. and took the pain only maybe 20-30 percent ....  i don't know.. so afrid to take meds again....  but on the other hand - it's impossible to live lke that.. thinking so much of "ending it all" ... .and don't want to  . i was a healthy guy - there must be a solution.

do you think the cymbalta is worth it ? 

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Permalink Reply by kimik0206 on February 10, 2012 at 7:54am

Nir Morita,  Please don't think so much of ending it all.  We are all here to support each other and help each other battle this terrible thing we all have.

I don't know if the Cymbalta is worth it, but I think it helps keep me from crying most days.  I too went to the dentist and then it all started.  But i also have lived through a Brain Aneursym, so I feel I'm still here for a reason.  I'm not sure what that reason is, but I'm willing to fight until I figure out what it is.  I believe you are hear for a reason also my friend.  Please keep fighting.   "Someday everything will make perfect sense, so laugh through the confusion, Smile through the tears and keep reminding yourself the everything happens for a reason." 

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Permalink Reply by El Jook on February 10, 2012 at 8:47am

I'm on EVERYTHING (except Tegretol, because I was allergic to it, but I rolled the dice for Trileptal).  It's probably gonna take some time before it kicks in, and they'll up the Neurotin, and Cymbalta.  I wouldn't be surprised if Keppra became part of this diet.  

 

And as always, I recommend vodka, and a little marijuana on the side.  Spare money for pizza!

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Permalink Reply by Scott on February 10, 2012 at 9:59am

Kimi,

I understand about going out for fear of having an attack or putting more drugs in your system. I also pray for your therapy to work and any treatment anyone with tn will work for them. Don't apologize for venting, I am here for you as are the other members.  keep the faith and have a great day!

Scott

kimik0206 said:

I'm trying Scott. Thank you  It is so hard when I'm embarrassed to go out anywhere in fear of having "attacks"  I'm praying that my therapy sessions will work.  I don't want to just pump more drugs into my body.  I have a great job and I'm afrain if they put more drugs in me I won't be able to do it anymore.  Sorry for venting to you.  I hope you have a great day.

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