Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.


Welcome! You're not alone.

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All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

Always seek the advice of your physician or qualified health provider with any questions regarding your health.

Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
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  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
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  9. Religious content must be restricted to the prayer group.
  10. No politics, please.

Thanks for your cooperation.


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SF Bill

Welcome to Living with TN

If you or a loved one is suffering from Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship. Please describe don't prescribe. All of our Journeys are different. The sum of experiences is invaluable.

For information on Trigeminal Neuralgia

  • Type 1 and 2 Mostly in the USA, see Fact Sheet
  • Internationally there are seven recognized types of TN that you can read about here
  • There are also a number of folks who experience TN like symptoms as the result of Cervical issues and injury. You can read a bit about Occipital neuralgia here.

While this site is a virtual community of and for people who have TN, there are others who also experience long-lasting severe face pain that is not diagnosed as TN.  Anyone suffering form severe face pain is welcome. Shared experiences here can be empowering for both the diagnosed, undiagnosed, or simply supportive for anyone experiencing severe facial pain. What ever the source of the pain, many experiences are the same.  It is intended to be a safe place for patients and family.


Living with TN2

Started by atashkade in New Member Introductions. Last reply by atashkade 1 hour ago. 7 Replies

I am new to this forum but had been suffering facial pain since 2007. Mine started with an ear infection that expanded on the left side of my face and damaged Vestibular, Auditory, Trigeminal and the inside my mouth nerves. As if there was not…Continue

Tags: dizziness, pain, facial

go fund me

Started by Jennifer Muir in General. Last reply by Jennifer Muir 1 hour ago. 14 Replies

I know everyone here is battling as well but I've been looking for some help and created a go fund me account. I don't have insurance and this has been a financial nightmare. It took 11 doctors to get to the right place if anyone could help donate…Continue

Fàce hurting

Started by Mini in General. Last reply by Mini 2 hours ago. 5 Replies

Hello, I don't know if I am in the right place for this but I am new and am not sure where I should put this. I saw my doctor last week and he said I hàve Tic pain I can't remember the other name.  He could touch places on my face with a cotton ball…Continue

any other Irish out there??

Started by suzi in General 4 hours ago. 0 Replies

I'm just curious to know if there anyone closer to home, that knows the way the Irish medical "system" (for lack of a better works) goes? That would be in the same situation as myself.

Latest Activity

atashkade replied to atashkade's discussion Living with TN2
"Hi Lynn, yes I have and now use night guards. You would not believe how many different things I…"
1 hour ago
Pepsilynn replied to atashkade's discussion Living with TN2
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1 hour ago
CindyLou left a comment for Juliette Suzanne
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CindyLou and Juliette Suzanne are now friends
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TN Basics is Up

A new Tab has been added with some TN Basics. Personal Journeys, resources and more. We will be adding to it on a regular basis.


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Does Your TN Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit for information on where to call.


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