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If you or a loved one is suffering from Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship.
* Please keep in mind we are not doctors and don't treat TN. We are here for comfort and support. You should be consulting a doctor for treatment and advice.
For information on Trigeminal Neuralgia
Type 1 and 2, see Fact Sheet.
A very useful two-hour film: Dr Ken Casey speaks to a TN support group: See Vimeo.
I had an interesting situation and was wondering if anyone could relate....I was taking a lot of anti seizure drugs and antidepressants for TN 2 for a long time and got sick because I actually increased the dosage too much. I mistakenly stopped…Continue
Hi. I was newly diagnosed on September 25th so this is quite a big change for me.I woke up on July 14 to find my left cheek to be somewhat numb. Scared thinking I was having a stroke I had my husband take me to the ER. They did a CT scan and all…Continue
Hi everyone, I just watched a TED talk on the causes of Alzheimer's and apparently they are now getting closer to understanding what may be causing the disease (after no real progress in 114 years!). It's allegedly a problem with protein plaques…Continue
Thank you all for listening. I saw my neuro at a big teaching hospital in NYC yesterday and he is like this is not a neuro problem but a tooth problem that just needs time to settle down. Although he did agree with the oral surgeon about the…Continue
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Posted by Robbie on September 5, 2015
Posted by buttercookie on September 30, 2015
Posted by pain for years on September 14, 2015
Posted by Amy Salisbury on September 23, 2015
Posted by Miranda Thomas on September 4, 2015
Anticonvulsants such as carbamazepine, oxcarbazepine, topiramate, phenytoin, or gabapentin are overall the most effective medications for Trigeminal Neuralgia. Anti-convulsant effects may be potentiated with moderate to high levels of adjuvant therapies such as baclofen and/or clonazepam. Baclofen may also help some patients eat more normally if jaw movement tends to aggravate the symptoms.
Low doses of some antidepressants are known to be effective in treating neuropathic pain and atypical trigeminal neuralgia. These drugs have been acknowledged in practice standards advocated by such organizations as the International Association for the Study of Pain (IASP).
Botox can be injected into the nerve by a physician, and has been found helpful using the "migraine" pattern adapted to the patient's special needs. Stellate ganglion block or other nerve blocks with Lidocaine, Xilocaine, or cortico-steroids are also used for short-term relief. Some patients may also find relief by having their neurologist implant a neuro-stimulator.
If anticonvulsants do not help and surgical options have failed or are ruled out, the pain may be treated long-term with an opioid such as methadone, oxycodone or Duragesic in patch form. Opiate-based analgesics are not effective for many patients, but may be helpful for others. Opioid drugs do not directly address the neurological mechanisms which cause Trigeminal Neuralgia attacks, but may decrease the pain sensation that is experienced by the patient.
Many patients cannot tolerate medications for years with acceptable side effects. An alternative treatment is to take a drug such as gabapentin in an externally applied cream base, after processing by a pharmacist who compounds drugs. .
For extended information - click here.
or select the "Face Pain Info" tab in the top menu of any page on the site.
Reminder: unless a person states otherwise, we are not doctors but do have the same goals. Always consult your doctor about medications.
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide information to help enable you to make informed decisions about your health care, with the guidance of licensed health care professionals.