Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.


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SF Bill

Welcome to Living with TN

If you or a loved one is suffering from Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship. Please describe don't prescribe. All of our Journeys are different. The sum of experiences is invaluable.

For information on Trigeminal Neuralgia

  • Type 1 and 2 Mostly in the USA, see Fact Sheet
  • Internationally there are seven recognized types of TN that you can read about here
  • There are also a number of folks who experience TN like symptoms as the result of Cervical issues and injury. You can read a bit about Occipital neuralgia here.

While this site is a virtual community of and for people who have TN, there are others who also experience long-lasting severe face pain that is not diagnosed as TN.  Anyone suffering form severe face pain is welcome. Shared experiences here can be empowering for both the diagnosed, undiagnosed, or simply supportive for anyone experiencing severe facial pain. What ever the source of the pain, many experiences are the same.  It is intended to be a safe place for patients and family.



Started by Janine in Medications for Face Pain. Last reply by chusty 2 minutes ago. 23 Replies

Today my doctor decided to try me on lamotrgine, has anyone alse ever tried this and has it been effective?

Unable to adjust Neck angle and stop shooting pain to the jaw.

Started by Banjo brain in Symptoms 22 minutes ago. 0 Replies

Hi there, has anyone had an issue with attempting to sleep and are unable to find angle in which the shooting pain to the jaw is calmed. ? I have tried looking up while trying to hold my head twisting it slowly to possibly find a spot where the pain…Continue

Cataract Surgery

Started by Not Again in The Back Room 25 minutes ago. 0 Replies

I am 67 and facing cataract surgery next month, first one eye and then several weeks later the other. I have read the previous posts from people that have ATN and have had cataract surgery. I am not worried about the surgery itself (seen it done…Continue

TN & Low Blood Sugar

Started by Cindy in The Back Room. Last reply by shadow2 3 hours ago. 6 Replies

As some know, I joined this support group on behalf of my mom who suffers from TN.  I'm by her side 24/7 and having a problem I need I could use some input on.  She is also diabetic (type 2).  For the past week, she has had pain that has been worse…Continue

Dental work

Started by robyn holder in General. Last reply by Stella73 3 hours ago. 185 Replies

Is there anyone else who had dental work (in my case, a root canal) and had TN result from the dental work? At least, I know that I never had any pain or any complications of any kind until just after having a root canal.

Tags: anaesthetic, local, pain, tn, care

Glossopharyngeal neuralgia

Started by Christine in General. Last reply by wendyjo 5 hours ago. 1 Reply

Has anyone developed glossopharungeal neuralgia AFTER successful MVD for TN?I'm a bit concerned that this is happening to me.Continue

Latest Activity

chusty replied to Janine's discussion lamotrigine
"Thanks Not Again. I'm so tired but afraid to go to bed. I think my only way forward is surgery…"
2 minutes ago
Banjo brain posted a discussion

Unable to adjust Neck angle and stop shooting pain to the jaw.

Hi there, has anyone had an issue with attempting to sleep and are unable to find angle in which…See More
22 minutes ago
Not Again posted a discussion

Cataract Surgery

I am 67 and facing cataract surgery next month, first one eye and then several weeks later the…See More
25 minutes ago
Profile IconChristy Tschopp, hannah, Tooyung4TN and 1 more joined Trigeminal Neuralgia (TN) - Online Support Group
35 minutes ago

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Top Discussions 

1 Help! I feel lost, and broken down.

Help! I feel lost, and broken down.

Posted by Tonia Arceneaux Booth on April 7, 2016

2 Newly diagnosed & don't know what to do

Newly diagnosed & don't know what to do

Posted by Lyss on April 16, 2016

3 When should I have MVD?

When should I have MVD?

Posted by Steph on April 21, 2016

4 Hereditary!!!


Posted by Julie on April 11, 2016

5 Give up

Give up

Posted by Ed on April 20, 2016

TN Basics is Up

A new Tab has been added with some TN Basics. Personal Journeys, resources and more. We will be adding to it on a regular basis.


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Does Your TN Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit for information on where to call.


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