Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.


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Jackie C.
SF Bill

Welcome to Living with TN

If you or a loved one is suffering from Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship.

* Please keep in mind we are not doctors and don't treat TN. We are here for comfort and support. You should be consulting a doctor for treatment and advice.

For information on Trigeminal Neuralgia

Type 1 and 2, see Fact Sheet.

A very useful two-hour film:  Dr Ken Casey speaks to a TN support group:  See Vimeo.



Return of pain

Started by Laura in Surgery & Recovery for Face Pain. Last reply by I have a suggestion 5 hours ago. 2 Replies

I had an interesting situation and was wondering if anyone could relate....I was taking a lot of anti seizure drugs and antidepressants for TN 2 for a long time and got sick because I actually increased the dosage too much. I mistakenly stopped…Continue

Newly diagnosed

Started by PrincessMoo in New Member Introductions 12 hours ago. 0 Replies

Hi. I was newly diagnosed on September 25th so this is quite a big change for me.I woke up on July 14 to find my left cheek to be somewhat numb.  Scared thinking I was having a stroke I had my husband take me to the ER.  They did a CT scan and all…Continue

Any connection between Alzheimer's and TN?

Started by Woman with the electric teeth in General 15 hours ago. 0 Replies

Hi everyone, I just watched a TED talk on the causes of Alzheimer's and apparently they are now getting closer to understanding what may be causing the disease (after no real progress in 114 years!). It's allegedly a problem with protein plaques…Continue

Tags: neurodegeneration, TN, Alzheimer's

So confused

Started by Susan Mella Schwartz in What's New With You?. Last reply by Bob E. 16 hours ago. 12 Replies

Thank you all for listening. I saw my neuro at a big teaching hospital in NYC yesterday and he is like this is not a neuro problem but a tooth problem that just needs time to settle down. Although he did agree with the oral surgeon about the…Continue

Latest Activity

Mary left a comment for Bobbi King
"Hello Bobbi King.  This is the best place to find out information about the condition. …"
2 hours ago

Mary left a comment for PrincessMoo
"Hello PrincessMoo.  Welcome to the site.  I see you have already started a…"
2 hours ago

Mary left a comment for joanna314
"Hello joanna314.  Glad that you found us,  Everyone here are very helpful and…"
2 hours ago

Mary left a comment for TNSucks
"Hello TNSucks.  Good name!!  Welcome to the community.  I don't know what dose…"
2 hours ago
I have a suggestion replied to Laura's discussion Return of pain
"When I was diagnosed with TN I was having the sharp facial pains on one side.  Tegretol was…"
5 hours ago
Profile IconTNSucks, joanna314, PrincessMoo and 1 more joined Trigeminal Neuralgia (TN) - Online Support Group
6 hours ago
PrincessMoo posted a discussion

Newly diagnosed

Hi. I was newly diagnosed on September 25th so this is quite a big change for me.I woke up on July…See More
12 hours ago
PrincessMoo updated their profile
13 hours ago

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Top Discussions 

1 Narcotic pain meds as only option for TN2

Narcotic pain meds as only option for TN2

Posted by Robbie on September 5, 2015

2 Feeling lost

Feeling lost

Posted by buttercookie on September 30, 2015

3 Recently diagnosed with GN.

Recently diagnosed with GN.

Posted by pain for years on September 14, 2015

4 Headaches ever day TN1 and TN2

Headaches ever day TN1 and TN2

Posted by Amy Salisbury on September 23, 2015

5 MVD experiences

MVD experiences

Posted by Miranda Thomas on September 4, 2015

TN Medication possibilities

Anticonvulsants such as carbamazepine, oxcarbazepine, topiramate, phenytoin, or gabapentin are overall the most effective medications for Trigeminal Neuralgia.  Anti-convulsant effects may be potentiated with moderate to high levels of adjuvant therapies such as baclofen and/or clonazepam. Baclofen may also help some patients eat more normally if jaw movement tends to aggravate the symptoms.

Low doses of some antidepressants are known to be effective in treating neuropathic pain and atypical trigeminal neuralgia.  These drugs have been acknowledged in practice standards advocated by such organizations as the International Association for the Study of Pain (IASP).

Botox can be injected into the nerve by a physician, and has been found helpful using the "migraine" pattern adapted to the patient's special needs. Stellate ganglion block or other nerve blocks with Lidocaine, Xilocaine, or cortico-steroids are also used for short-term relief.  Some patients may also find relief by having their neurologist implant a neuro-stimulator.

If anticonvulsants do not help and surgical options have failed or are ruled out, the pain may be treated long-term with an opioid such as methadone, oxycodone or Duragesic in patch form. Opiate-based analgesics are not effective for many patients, but may be helpful for others. Opioid drugs do not directly address the neurological mechanisms which cause Trigeminal Neuralgia attacks, but may decrease the pain sensation that is experienced by the patient.

Many patients cannot tolerate medications for years with acceptable side effects.  An alternative treatment is to take a drug such as gabapentin in an externally applied cream base, after processing by a pharmacist who compounds drugs. .

For extended information - click here.
TNA Information

or select the "Face Pain Info" tab in the top menu of any page on the site.

Reminder: unless a person states otherwise, we are not doctors but do have the same goals. Always consult your doctor about medications.



This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide information to help enable you to make informed decisions about your health care, with the guidance of licensed health care professionals.


Help Us Help Others

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Does Your TN Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit for information on where to call.


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