Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.


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SF Bill

Welcome to Living with TN

If you or a loved one is suffering from Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship. Please describe don't prescribe. All of our Journeys are different. The sum of experiences is invaluable.

For information on Trigeminal Neuralgia

  • Type 1 and 2 Mostly in the USA, see Fact Sheet
  • Internationally there are seven recognized types of TN that you can read about here
  • There are also a number of folks who experience TN like symptoms as the result of Cervical issues and injury. You can read a bit about Occipital neuralgia here.

While this site is a virtual community of and for people who have TN, there are others who also experience long-lasting severe face pain that is not diagnosed as TN.  Anyone suffering form severe face pain is welcome. Shared experiences here can be empowering for both the diagnosed, undiagnosed, or simply supportive for anyone experiencing severe facial pain. What ever the source of the pain, many experiences are the same.  It is intended to be a safe place for patients and family.


Driving on Gabapentin?

Started by Karen in Austin in Medications for Face Pain. Last reply by Janet McGee 32 minutes ago. 96 Replies

For those who take gabapentin, are you able to drive? I've been putting off trying it, because I'm very worried about how it might affect my work.  I typically visit 3 different offices each day.  So I'm on the road quite a bit.  And I am a bad…Continue

Questions to ask surgeon?

Started by Beach Lover in General. Last reply by Christine 1 hour ago. 5 Replies

I have my consultation with Dr. Kenneth Casey June 1. Do any of you have suggestions for good questions to ask? I'm a little nervous! Thanks

anyone had ATN sufferer had experience with periodontal surgery

Started by thehoward in General. Last reply by thehoward 1 hour ago. 5 Replies

My dentist wants me to have gum surgery to clean out gunk that has weakened the connection between teeth and bone. I'm wary of any procedure involving my face COULD make my ATN worse. I'd rather loose teeth. Has anyone had this procedure and things…Continue

Return of pain

Started by Laura in Surgery & Recovery for Face Pain. Last reply by Uncle Al 10 hours ago. 138 Replies

I had an interesting situation and was wondering if anyone could relate....I was taking a lot of anti seizure drugs and antidepressants for TN 2 for a long time and got sick because I actually increased the dosage too much. I mistakenly stopped…Continue

Stop the War On Chronic Pain Patients

Started by Richard A. "Red" Lawhern in The Back Room 15 hours ago. 0 Replies

As many members at Living With TN are aware, I am active in many online forums pertinent to chronic face pain and chronic pain in general.  In one of those forums, I have just had a major op ed published, title "Stop The War On Chronic Pain…Continue

Just Joined!

Started by MsChelleRae in New Member Introductions. Last reply by Pontoosuc yesterday. 4 Replies

Just wanted to say Hello. I just joined this group but I'm not really sure why. I have great support at home it just feels like nobody really understands what it is like to live with this type of pain. Maybe it's just me but I am really tired of…Continue

Latest Activity

Janet McGee replied to Karen in Austin's discussion Driving on Gabapentin?
"Horses are wonderful therapy, because they are such great people! I think it's so important to…"
32 minutes ago
Danielle posted a blog post

mvd surgery

I just had MVD surgery Monday and came home today . Have you had good success with this surgery
46 minutes ago
Profile IconDanielle, Lillian, Erin pringle and 1 more joined Trigeminal Neuralgia (TN) - Online Support Group
49 minutes ago
Christine replied to Beach Lover's discussion Questions to ask surgeon?
"Please feel free to ask me any question you may have!"
1 hour ago

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Trigeminal Neuralgia (TN) - Online Support Group - We are patients living with Trigeminal Neuralgia, here for your support.

TN Basics is Up

A new Tab has been added with some TN Basics. Personal Journeys, resources and more. We will be adding to it on a regular basis.


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