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If your family has been affected by Trigeminal Neuralgia, consider Living With TN Support Group your second home.
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For information on Type 1 and Type 2 Trigeminal Neuralgia see
Also potentially useful is an online pain assessment form developed by Dr. Kim Burchiel at the Oregon Health and Science University (OHSU). No such instrument is perfect for all facial pain patients. Several of our members report that this form tends to under-report Type 2 TN pain, and mixtures of Type 1 and Type 2. But your results might start a helpful discussion with your physicians.
Ben's Friends Survey of Patients Referred to Psychiatrists and Psychologists.
The Ben's Friends support communities conducted a survey in February 2013. We wanted to learn about your experiences (positive and negative), if you have been sent by a medical doctor to a psychiatrist, psychologist, or other mental health professional. Detailed results of this survey are now posted for Ben's Friends membership and the public. A summary of findings was published in the blog of Dr Allen Frances, MD, on Psychology Today
Your voices are being heard. A groundswell of protest is being registered by patients and psychiatric professionals alike, against publication of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) by the American Psychiatric Association. For more on this controversy, feel free to visit "Patients Are Making a Difference". [Last Update June2, 2013]
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Please go to the Apple iTunes App Store and download it now. It would be incredibly helpful if you gave it a 5 Star Review in Apple's iTunes. Strong reviews, especially 5 stars, bumps up the Ben's Friends App in Apple's Search Results, which makes it easier for other people with rare conditions to find the App in the App Store and for them to find support.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
If you or a loved one is suffering from Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship!
*Please keep in mind we are not doctors and don't treat TN. We are here for comfort and support. You should be consulting a doctor for treatment and advice.
**For members in the United States, IF YOU ARE THINKING OF SUICIDE AND IN IMMEDIATE NEED OF HELP, please feel free to call 1-800-273-TALK to get a referral. For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call in your country.
Posted by wendyjo on November 19, 2013
Posted by Swayambhu Mishra on December 7, 2013
For those on the medicaion merry-go-round..... I've compiled a list - Print it off for later resource if needed
Posted by Kc Dancer Kc on June 7, 2013
Posted by studentNpain on November 24, 2013
Posted by shadow2 on December 6, 2013
Anticonvulsants such as carbamazepine, oxcarbazepine, topiramate, phenytoin, or gabapentin are overall the most effective medications for Trigeminal Neuralgia. Anti-convulsant effects may be potentiated with moderate to high levels of adjuvant therapies such as baclofen and/or clonazepam. Baclofen may also help some patients eat more normally if jaw movement tends to aggravate the symptoms.
Low doses of some antidepressants are known to be effective in treating neuropathic pain and atypical trigeminal neuralgia. These drugs have been acknowledged in practice standards advocated by such organizations as the International Association for the Study of Pain (IASP).
Botox can be injected into the nerve by a physician, and has been found helpful using the "migraine" pattern adapted to the patient's special needs. Stellate ganglion block or other nerve blocks with Lidocaine, Xilocaine, or cortico-steroids are also used for short-term relief. Some patients may also find relief by having their neurologist implant a neuro-stimulator.
If anticonvulsants do not help and surgical options have failed or are ruled out, the pain may be treated long-term with an opioid such as methadone, oxycodone or Duragesic in patch form. Opiate-based analgesics are not effective for many patients, but may be helpful for others. Opioid drugs do not directly address the neurological mechanisms which cause Trigeminal Neuralgia attacks, but may decrease the pain sensation that is experienced by the patient.
Many patients cannot tolerate medications for years with acceptable side effects. An alternative treatment is to take a drug such as gabapentin in an externally applied cream base, after processing by a pharmacist who compounds drugs. .
For extended information - click here.
or select the "Face Pain Info" tab in the top menu of any page on the site.
Reminder: unless a person states otherwise, we are not doctors but do have the same goals. Always consult your doctor about medications.
This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide information to help enable you to make informed decisions about your health care, with the guidance of licensed health care professionals.
New member says:
Thank you so much for the welcome. So happy I found a place to share and find information - (i need all I can get right now- so much to take in.) Many thanks to all.
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