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If you or a loved one is suffering from Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship. Please describe don't prescribe. All of our Journeys are different. The sum of experiences is invaluable.
For information on Trigeminal Neuralgia
While this site is a virtual community of and for people who have TN, there are others who also experience long-lasting severe face pain that is not diagnosed as TN. Anyone suffering form severe face pain is welcome. Shared experiences here can be empowering for both the diagnosed, undiagnosed, or simply supportive for anyone experiencing severe facial pain. What ever the source of the pain, many experiences are the same. It is intended to be a safe place for patients and family.
Finally found someone willing to help. Pain management Dr is doing what I believe is a steroid nerve block straight into the trigeminal nerve. With my pain being only to the inside if my mouth / teeth / burning...anyone have any opinions or been…Continue
Does anybody else experience flu-like symptoms, if you do too much? I find that if I have a full day of activity, the next day or 2 I am wiped out and sleep for hours with body aches. Not to mention huge flare-up with face pain. MBContinue
Hi all. I have been struggling with a significant increase in a familiar type of pain I've had off and on since my teens. The severity and time between bouts have ratcheted up so much, I finally started asking questions because the pain was hard to…Continue
I just want to ask once again because sometimes I think I'm crazy for accepting the diagnosis of atn and that the doctors just really don't know. I have no pain what so ever on the outside of my face . everything is only inside the mouth on the left…Continue
Hello all. I finally saw a neurosurgeon for my type two that I've been suffering with for nine months. I was hoping that he would say yes your saved were doing a rhizotomy or gamma knife or something but nope he said no surgical options were a good…Continue
Does anyone have any trouble peeing while taking Gabapentin? I only take it when I have episodes of pain and have had to take it this past week. While I really feel the urge to go, I can't. It takes the longest time to get the stream flowing and…Continue
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Posted by Karen Brown on January 18, 2016
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Posted by Richard A. "Red" Lawhern on January 22, 2016
Posted by borris on January 12, 2016
Posted by aiculsamoth on February 4, 2016
A new Tab has been added with some TN Basics. Personal Journeys, resources and more. We will be adding to it on a regular basis.