Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.

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All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.

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==

Edster
Gail
Jackie C.
Mimi
MinC
Red
SF Bill
Smiley
Iamrite
Scott
 

Welcome to Living with TN

If you or a loved one is suffering from Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship.

* Please keep in mind we are not doctors and don't treat TN. We are here for comfort and support. You should be consulting a doctor for treatment and advice.

For information on Trigeminal Neuralgia

Type 1 and 2, see Fact Sheet.

A very useful two-hour film:  Dr Ken Casey speaks to a TN support group:  See Vimeo.

 

Forum

Precutanious Balloon Compression

Started by Edster in General. Last reply by Janet McGee 3 hours ago. 79 Replies

HelloI was wondering if anyone had gone through percutaneous balloon compression? I don't know what to expect and I am most concerned about post op issues. Like many of our members, I have been struggling with TN for years and I am hoping this…Continue

October 7th, 2015 3rd International TN Awareness Day Light Up Teal

Started by TNNME in General. Last reply by Dawn Monarch 3 hours ago. 1 Reply

We’re honored by this year approvals for the “Light up Teal” participates on October 7th, 2015 3rd International TN Awareness Day and more to come!1. CN Tower Canada2. Gateshead Millenium Bridge England3. Mid - Hudson Bridge USA4. Medieval Museum…Continue

Occipital and Trigeminal Neuralgia

Started by brown eyed girl in Symptoms. Last reply by TN REAL 13 hours ago. 1 Reply

I have been looking for different forums that will help me with treatment options concerning both Occipital and Trigeminal neuralgia. I can find forums on both but not together. Has anyone had both conditions?My pain is sharp/stabbing pain when not…Continue

Pericardial Effusion

Started by Patty in General. Last reply by Patty 16 hours ago. 2 Replies

Good morning friends,Life has thrown yet another curve ball at me at I am hoping that at least one of you has had some experience with this and can lend some constructive advice.I was recently diagnosed with a small pericardial effusion. This was…Continue

Latest Activity


Moderator
Gail C left a comment for Yellow
"Welcome. You have found a wonderful group here, filled with a wealth of information and support, as…"
1 minute ago
FootprintsInTheSand liked TNNME's discussion October 7th, 2015 3rd International TN Awareness Day Light Up Teal
1 hour ago

Moderator
Scott left a comment for Yellow
"Greetings Yellow, Welcome to the best site for info and resources on TN! You will find many caring…"
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Profile IconYellow, brown eyed girl, Aingeal and 1 more joined Trigeminal Neuralgia (TN) - Online Support Group
2 hours ago
Janet McGee replied to Edster's discussion Precutanious Balloon Compression
"When I said 2,000, I was thinking of MVD's. So many surgeons seem to rate them more highly…"
3 hours ago
Dawn Monarch replied to TNNME's discussion October 7th, 2015 3rd International TN Awareness Day Light Up Teal
"Hi TNNME, THAT IS SO COOL!!!!! I was wondering when someone might bring this discussion up. The…"
3 hours ago
Norm commented on Norm's blog post typical and atypical tn
"Jane  , that makes 2 of us, am looking for answers, but there doesn't seem to be many,…"
6 hours ago
stella commented on Norm's blog post typical and atypical tn
"Norm, my left nostril did the same thing. It was a deviated septum and had nothing to do with the…"
7 hours ago

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Top Discussions 

1 Driving on Gabapentin?

Driving on Gabapentin?

Posted by Karen in Austin on June 26, 2015

2 Remission- I would also like to hear what Red says about this

Remission- I would also like to hear what Red says about this

Posted by mamaof2 on June 19, 2015

3 Precutanious Balloon Compression

Precutanious Balloon Compression

Posted by Edster on June 27, 2015

4 My Brother Has Tingling in Face

My Brother Has Tingling in Face

Posted by Odeliasimone on July 2, 2015

5 Difficulties with eating

Difficulties with eating

Posted by Libby's Mom on July 5, 2015

TN Medication possibilities

Anticonvulsants such as carbamazepine, oxcarbazepine, topiramate, phenytoin, or gabapentin are overall the most effective medications for Trigeminal Neuralgia.  Anti-convulsant effects may be potentiated with moderate to high levels of adjuvant therapies such as baclofen and/or clonazepam. Baclofen may also help some patients eat more normally if jaw movement tends to aggravate the symptoms.

Low doses of some antidepressants are known to be effective in treating neuropathic pain and atypical trigeminal neuralgia.  These drugs have been acknowledged in practice standards advocated by such organizations as the International Association for the Study of Pain (IASP).

Botox can be injected into the nerve by a physician, and has been found helpful using the "migraine" pattern adapted to the patient's special needs. Stellate ganglion block or other nerve blocks with Lidocaine, Xilocaine, or cortico-steroids are also used for short-term relief.  Some patients may also find relief by having their neurologist implant a neuro-stimulator.


If anticonvulsants do not help and surgical options have failed or are ruled out, the pain may be treated long-term with an opioid such as methadone, oxycodone or Duragesic in patch form. Opiate-based analgesics are not effective for many patients, but may be helpful for others. Opioid drugs do not directly address the neurological mechanisms which cause Trigeminal Neuralgia attacks, but may decrease the pain sensation that is experienced by the patient.

Many patients cannot tolerate medications for years with acceptable side effects.  An alternative treatment is to take a drug such as gabapentin in an externally applied cream base, after processing by a pharmacist who compounds drugs. .

For extended information - click here.
Or
TNA Information

or select the "Face Pain Info" tab in the top menu of any page on the site.

Reminder: unless a person states otherwise, we are not doctors but do have the same goals. Always consult your doctor about medications.

 

Disclaimer


This site is not intended to diagnose, prescribe, or replace the service of your physician, but solely to provide information to help enable you to make informed decisions about your health care, with the guidance of licensed health care professionals.

 
 
 

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Does Your TN Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

 

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typical and atypical tn

Posted by Norm on July 29, 2015 at 9:01pm 4 Comments

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