Living With and Treating Trigeminal Neuralgia
Living with Trigeminal Neuralgia? Don't suffer alone. We are here for your support.
Photos
Groups
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TN Fashion Show
12 members
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For TN Patients in The...
8 members
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TNT - Then, Now, Tomorrow
11 members
Events
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Sunday nights chatters!~
March 1, 2009 at 4pm to March 7, 2010 at 7pm – Right here at Living with TN
Where is Chat?
* (Instructions are now in the FAQ's)
*There is a tab on the top bar to use for chat or,
*Clicking on the green/red dot will connect or disconnect you.
*It also has a little flag on the bottom bar if someone wants to talk in pvt.
*Have a great day all!~
Just lil helpful hints to those who aren't as familiar with the chat. (updated evening of 7/3/09) rl
Add as Friend?
Videos
Birthdays
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A little bit about TN and us..
The condition can bring about stabbing, mind-numbing, electric shock-like pain from just a finger's glance of the cheek. For extended information - click here.
*Please keep in mind this is a support group of a wonderful collection of people with TN or a family, friend, coworker etc. Unless a person states otherwise, we are not doctors but do have the same goals. To get well!~ Thank you for being part of our Support Group
Latest Activity
Forum
Just Diagnosed but had TN for the last 2 years
I just joined. Started taking gabapentin last night. I put my story in my profile and won't repeat it here. It was so nice to see a website for those of us with TN. Want to say thanks and hope to ...
Tagged: depression, new
Started by Becky Dekker 3 hours ago.
Songs to sooth the savage, or create one lol 19 Replies
just a place to post our favorite tunes ~
Started by Ro~. Last reply by Ro~ Jul 7.
NEW PAIN MEDICATIONS RELEASED 7 Replies
On 22 June 2009, DEA Drug Enforcement Agency approval was received in the United States for a new pain drug called Tapentadol. The brand name is Nucynta. (noo-SIN-tah) The new pain drug was especi...
Tagged: new treatments, government banning meds, medicine, pain
Started by Sheila. Last reply by Misty Jul 7.
AARP - Asking Doctors Tough Questions (suggestions)
Being an engaged member of your own health care team is crucial to your health How to Ask Good Questions At the doctor’s office: Experts suggest that patients go to an appointment with a set of q...
Started by Ro~ Jul 6.
EASY TO SWALLOW DRINK! SMOOTHIES!!! 1 Reply
http://www.easytoswallow.co.uk/smoothies.html#virg
Started by Joanne. Last reply by Ro~ Jul 4.
New Novel and Promising Treatment for TN that may help limit medication Side Effects-recent new article reviewing the subject of topical ketamine, which , when combined with the Nanovibronix Surface a 1 Reply
New Novel and Promising Treatment for TN that may help limit medication Side Effects-recent new article reviewing the subject of topical ketamine, which , when combined with the Nanovibronix Surfac...
Started by DR Haim-Moshe Adhan. Last reply by DR Haim-Moshe Adhan Jun 28.
For all our dads out there 1 Reply
I wanted to take a moment and wish all our fathers a very happy father's day. Best wishes, Sarah
Started by Sarah Hobbs. Last reply by Ro~ Jun 21.
Why are survivorship issues for TN patients not addressed?? 9 Replies
I have begun to wonder why survivorship issues for TN patients are not addressed by the medical community. I am talking about things like the mental health issues. About the time I decided to go ah...
Started by Sarah Hobbs. Last reply by Sarah Hobbs Jun 21.
Please keep Tamara Thompson in your thoughts and prayers 5 Replies
I ask that you keep Tamara in your thoughts and prayers as she is going through MVD revision surgery today. Sarah
Started by Sarah Hobbs. Last reply by Ro~ Jun 14.
How is Liz K. doing? 2 Replies
Does anybody have an update on Liz K? I know she had surgery and was going to be offline for a bit, but I haven't seen anything posted from her since the first of May. Thank you . A
Started by Aleshia. Last reply by Sarah Hobbs Jun 14.
Blog Posts
Humor!~ gotta love it :))
Posted by Ro~ on July 9, 2009 at 6:21pm
Thanks for the warm welcome
Posted by Deb Urschlitz on July 9, 2009 at 11:10am — 1 Comment
Ideas for spreading word about TN
Posted by Stephanie Wyllyamz on July 8, 2009 at 5:15am — 3 Comments
FDA Actions on Pain Meds Containing Propoxyphene
Posted by Kerry on July 7, 2009 at 4:13pm
Summertime Question
Posted by Lena on July 7, 2009 at 5:41am — 4 Comments
IT was getting on my LAST nerve!!!
Posted by Aleshia on July 6, 2009 at 9:30pm — 4 Comments
No word on insurance appeal
Posted by Stephanie Wyllyamz on July 6, 2009 at 4:56pm — 6 Comments
Excellent Website
Posted by Lena on July 5, 2009 at 6:08pm
BAD left sided atypical pain
Posted by Stephanie Wyllyamz on July 2, 2009 at 12:41am — 9 Comments
In and out
Posted by Kathy Taylor on June 30, 2009 at 2:56pm — 3 Comments
Still swollen from GKRS, still pain
Posted by Stephanie Wyllyamz on June 29, 2009 at 1:13pm — 14 Comments
Vestibular disorder post-MVD surgery
Posted by Stephanie Wyllyamz on June 27, 2009 at 3:02pm
New meds - Trileptal (generic is Oxcarbazepine)
Posted by Stephanie Wyllyamz on June 27, 2009 at 2:00pm — 7 Comments
Barometric pressure
Posted by Kathy Taylor on June 26, 2009 at 10:08pm — 2 Comments
this site! THANK YOU!!!
Posted by Stephanie Wyllyamz on June 26, 2009 at 5:08pm — 1 Comment
Had 1st appt with neurologist post-GKRS
Posted by Stephanie Wyllyamz on June 26, 2009 at 2:00am — 1 Comment
Falling asleep in the middle of things
Posted by Stephanie Wyllyamz on June 25, 2009 at 4:44pm — 8 Comments
Gamma Knife and drooling
Posted by Stephanie Wyllyamz on June 25, 2009 at 4:39pm — 4 Comments
Hello
Posted by chad on June 23, 2009 at 1:56pm — 4 Comments
TN Medications
If anticonvulsants do not help and surgical options have failed or are ruled out, the pain may be treated long-term with an opioid such as methadone, oxycodone or Duragesic in patch form.
Low doses of some antidepressants are thought to be effective in treating neuropathic pain, but a tremendous amount of controversy exists on this topic, and their use is often limited to treating the depression that is associated with chronic pain, rather than the actual sensation of pain from the trigeminal nerve.
Botox can be injected into the nerve by a physician, and has been found helpful using the "migraine" pattern adapted to the patient's special needs.
Patients may also find relief by having their neurologist implant a neuro-stimulator.
Many patients cannot tolerate medications for years, and an alternative treatment is to take a drug such as gabapentin and place it in an externally applied cream base by a pharmacist who compounds drugs. Also helpful is taking a "drug holiday" when remissions occur and rotating medications if one becomes ineffective.
For extended information - click here.
Reminder: unless a person states otherwise, we are not doctors but do have the same goals. Always consult your doctor about medications.
Reference Links
*Microvascular decompression (MVD)
*Jawbone cavities and trigeminal and atypical facial neuralgias
*Neuropathic Pain in the Head and Neck
*Radiosurgery for trigeminal neuralgia and epilepsy
*Long-term efficacy of microvascular decompression
*Incidence and clinical features of trigeminal neuralgia
*Antiepileptic Drugs in the Management of Cluster Headache and Trigeminal Neuralgia
* Trigeminal Neuralgia Overview
* MCS Motor Cortex Stimulation
* DBS - Deep Brain Stimulation
* Drugs & Medications & Condition A-Z
*Stress induced TN and other causesPharmaceutical info
Clinical Connection
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