Trigeminal Neuralgia (TN) -  Online Support Group

We are patients living with Trigeminal Neuralgia, here for your support.


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SF Bill

Welcome to Living with TN

If you or a loved one is suffering from Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship. Please describe don't prescribe. All of our Journeys are different. The sum of experiences is invaluable.

For information on Trigeminal Neuralgia

  • Type 1 and 2 Mostly in the USA, see Fact Sheet
  • Internationally there are seven recognized types of TN that you can read about here
  • There are also a number of folks who experience TN like symptoms as the result of Cervical issues and injury. You can read a bit about Occipital neuralgia here.

While this site is a virtual community of and for people who have TN, there are others who also experience long-lasting severe face pain that is not diagnosed as TN.  Anyone suffering form severe face pain is welcome. Shared experiences here can be empowering for both the diagnosed, undiagnosed, or simply supportive for anyone experiencing severe facial pain. What ever the source of the pain, many experiences are the same.  It is intended to be a safe place for patients and family.


im getting a nerve block tuesday...

Started by Jennifer Muir in General. Last reply by CindyLou 4 hours ago. 5 Replies

Finally found someone willing to help. Pain management Dr is doing what I believe is a steroid nerve block straight into the trigeminal nerve. With my pain being only to the inside if my mouth / teeth / burning...anyone have any opinions or been…Continue

Worn Out

Started by Mary Beth Thorngren in Symptoms. Last reply by CindyLou 4 hours ago. 10 Replies

Does anybody else experience flu-like symptoms, if you do too much? I find that if I have a full day of activity, the next day or 2 I am wiped out and sleep for hours with body aches. Not to mention huge flare-up with face pain. MBContinue

Infraorbital nerve pain--TN or no?

Started by Judy CN in Symptoms 5 hours ago. 0 Replies

Hi all. I have been struggling with a significant increase in a familiar type of pain I've had off and on since my teens. The severity and time between bouts have ratcheted up so much, I finally started asking questions because the pain was hard to…Continue

atn and tooth pain

Started by Jennifer Muir in Symptoms. Last reply by Jennifer Muir 8 hours ago. 7 Replies

I just want to ask once again because sometimes I think I'm crazy for accepting the diagnosis of atn and that the doctors just really don't know. I have no pain what so ever on the outside of my face . everything is only inside the mouth on the left…Continue

pns for type 2

Started by Jennifer Muir in Nerve Stimulators. Last reply by Jennifer Muir 9 hours ago. 1 Reply

Hello all. I finally saw a neurosurgeon for my type two that I've been suffering with for nine months. I was hoping that he would say yes your saved were doing a rhizotomy or gamma knife or something but nope he said no surgical options were a good…Continue

Gabapentin and Urination

Started by Karen Brown in General. Last reply by Jennifer Muir 9 hours ago. 1 Reply

Does anyone have any trouble peeing while taking Gabapentin?  I only take it when I have episodes of pain and have had to take it this past week. While I really feel the urge to go, I can't.  It takes the longest time to get the stream flowing and…Continue

Latest Activity

Profile IconJoe Nutini, kevc38, Burning Glasses and 1 more joined Trigeminal Neuralgia (TN) - Online Support Group
3 hours ago
MJ liked BurnBabyBurn's video
3 hours ago
Pawley liked BurnBabyBurn's video
4 hours ago
CindyLou replied to Jennifer Muir's discussion im getting a nerve block tuesday...
"We will pray for you, Jennifer.  You've had a rough journey thus far."
4 hours ago

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Top Discussions 

1 Bilateral TN

Bilateral TN

Posted by Karen Brown on January 18, 2016

2 Some suggestions please...

Some suggestions please...

Posted by Dizzyowl on January 20, 2016

3 A Doctor Writes About Doctors and Chronic Pain

A Doctor Writes About Doctors and Chronic Pain

Posted by Richard A. "Red" Lawhern on January 22, 2016

4 Post MVD Update

Post MVD Update

Posted by borris on January 12, 2016

5 How are you diagnosed?

How are you diagnosed?

Posted by aiculsamoth on February 4, 2016

TN Basics is Up

A new Tab has been added with some TN Basics. Personal Journeys, resources and more. We will be adding to it on a regular basis.


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Does Your TN Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit for information on where to call.


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TN or Not TN

Posted by WNT2bPNFREE on February 4, 2016 at 10:27pm 0 Comments

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